My heart aches – I have loved two people with serious mental health disease. I am a caregiver, I want to be a contributing part of my loved ones’ health journeys. Heck, I became a nurse because I find fulfillment in being an intimate part of people’s health journey. I felt gnawing inadequacy living with my loved ones with serious depression. It killed me that they didn’t appreciate themselves as much as I valued them. We couldn’t figure out how to let me in to be part of their team. They were so alone, I got so angry. I honor this day to honor them. Lillie and Peggy, you made life rich. Thanks.
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
resilience EMR perception employment OpenNote improv disability shared decision making Giving Blue Button health team superpower MS ePatient Determinants of Health culture PHR immigrants technology innovation choices policy mindfulness evidence safety lived experience questions storytelling Recovery Behavioral Health customer service entrepreneur Simplicity Surveys Nursing research Community Health Health Planning balance multiple sclerosis Pregnancy Exercise standards grief learning Standard Health Record magic lever grace consent goals caregivers threshold Outcomes Medical Record fear access cost Pain health partners Advocates The Quadruple Aim Fibromyalgia PCORI music HIT catalyst chronic pain Best health caregiving Politics PROM interoperability leadership People at the Center of Care Pharma Care Partner Data habits haiku medication portal relationships Communication simulation informed decision-making sax ONC Just-in-Time decisions care planning Quality Measures Mentoring engagement Rest end-of-life adherence transitions palliative care community health literacy social media