As an e-patient advocate, I passionately believe in each of us being the pilot for our own health flight. So many legs in that health flight. While its a non stop flight for each of us from birth to death, it’s actually a journey with innumerable hops. As I re-enter my own health journey with energy now for others’ journeys, I’m struck by the shifting prominence of health team members. Sometimes we need a health team member to be our co-pilot, someone to take the wheel, read the map, or pave the way. A friend this week had an unwelcome and unusual constellation of symptoms – disconcerting, disruptive, freaky. This friend needs a co-pilot – a doctor to advise, diagnose, refer, integrate results. I had sudden acute abdominal pain. I also needed a co-pilot. As my mom was dying we needed several co-pilots: a hospice nurse to manage symptoms and equipment; a friend to manage logistics of care; and a mid-wife of dying to manage personal care and spiritual needs. Another friend is trying to lose weight. His co-pilot is a trainer. Ultimately, you can’t always be a solo pilot. Recognizing the need for a co-pilot, finding one, and trusting her/him is a magic lever of best health.
Get New Posts via Email
Your support is appreciated
Subscribe to my podcast:
Subscribe to my YouTube channel:
Search This Site
engagement portal inclusion Data informed decision-making Sickle Cell improv storytelling evidence patient experts mindfulness leadership Holocaust Communication culture music Pain innovation chronic illness MS stress ePatient advocacy multiple sclerosis shared decision making health partners self-care care planning chronic pain pain management adherence pathological optimism goals Behavioral Health Recovery health team magic lever mobility Community Health questions community Citizen participation clinical decision support Exercise Pay for value health goals State of Inclusion lived experience Care Partner listening apps Young Adult health literacy relationships CEO of Your Health pediatrics EHR Just-in-Time decisions consent People at the Center of Care Advocates EMR threshold care coordination resilience Medical Record grief caregiving interoperability CDS caregivers PHR trust Failure habits end-of-life diversity learning transitions technology superpower research wheelchair podcast young adults patient engagement Fibromyalgia Rest policy Determinants of Health podcasting Best health Health equity PCORI decision-making Health choices coaching Blue Button sax humor