Temporarily Able-Bodied People. We’re in This Together.

Covid19. Sad, angry, grieving. No grief without love. People with different abilities have a 15-min advantage on the temporarily able-bodied. Connect, learn, appreciate.

Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post.

Subscribe to Health Hats, the Podcast, on your favorite podcast player

Please support my podcast.

CONTRIBUTE HERE

Episode Notes

Prefer to read, experience impaired hearing or deafness?

Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here

Contents with Time-Stamped Headings

to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)

Rant 0053. 1

No grief without love and appreciation 03:04. 1

15-minute advantage 06:24. 2

Alberta Hunter’s My Castle’s Rockin’ 08:36  2

Please comments and ask questions

Credits

Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger

Sponsored by Abridge

Thanks to these fine people who inspired me for this episode: Janice Tufte, Michael Mittelman, Libby Hoy, Melissa Reynolds, Charlene Setlow, Geri Lynn Baumblatt, Denise Brown, Mary Anne Sterling, Bevin Croft, Donna Sara Traigle Van Geertruyden, Diane Gould,  Carmin Quirion Wyman, Casey Quinlan, Judy Thomas, Aaron Carroll, Dan Diamond

Related podcasts and blogs

The Ch’i of Covid19. Invincible.

Kind Re-Equilibration in the Age of Coronavirus

About the Show

Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life’s realities in the awesome circus of healthcare. Let’s make some sense of all this.

To subscribe go to https://www.health-hats.com/

Creative Commons Licensing

The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines.

The Show

Rant

I feel awash with melancholy; irritated when hearing others’ forced optimism, silver lining, time of opportunity blather. I’m outraged that the collective we didn’t have the foresight to keep maintained stockpiles of ventilators and that right-to-lifers consider the elderly and disabled as expendable. I’m dreaming of hugging my sons, daughters-in-law, and grandsons and waking up feeling empty and afraid. I know the Covid19 novel coronavirus is going nowhere.  We can best hope to sustain until brains, money, ingenuity, and time converge to rapid testing, tracing, vaccines, and a different social, financial, and political order and supply chains. My melancholy, anger, and emptiness feel right and understated. The world through our senses has changed, forever. Kiss it goodbye. This week, it touched me directly. An old friend, a 70-year old practicing primary care doc with diabetes, lies in a Detroit ICU on a ventilator. As Andrew Cuomo says in his daily briefings, the virus doesn’t discriminate. It affects us all. If not now, soon.

Today, we experience the impact of our short term, bottom line-oriented, feudal acute healthcare system. It’s been about business, money, and power. Our healthcare was only working for some before, it’s ready to crash now. The collective we appreciated public health only in its absence. We desperately need it now.

No grief without love and appreciation

I need to stop ranting, or I’ll drive myself helpless. Let’s review the situation. Melancholy, anger, and emptiness feel awfully familiar. Wait, they smell like grief, tragedy, and death – my steady companions -sometimes on my shoulder, always in my pocket. When my dad died suddenly at 45, I spent a month in shock. My friend Jerry helped me start to grieve. My life changed massively. I was young, 19. Good news, I had great friends. We’re still friends 50 years later. I grew up fast. I met my wife. I was ready for a relationship – silver lining. When our boy, Mike was dying, I got some help. Gregor taught me to take stock of my basic habits – diet, hydration, exercise, sleep – and hone those habits. He helped me see my major stressors and manage the manageable one’s. Build and strengthen health routines. Manage manageable stress. Now I’m a person with a neurodegenerative condition that’s never going to get better. I grieve that almost every day. Why me? Multiple Sclerosis prepared me for today’s tragedies. I’ve honed my habits and know how to operate at peak capacity. I have tools in my toolbox to manage my seriously annoying symptoms. This podcast is one of the tools.

What do my dad, my son, and I have in common? I love us. They are gone and I am here. I’ve learned to embrace grief. Grief is feeling my heart. It’s the stuff of life. The joy of love and appreciation occur first. Then there’s loss, grief. No grief without love and gratitude.  Same for you – feel grief? Let ‘er rip. You’re feeling your heart. Let’s give thanks for that love and gratitude.

That’s pretty heavy. Now what? As Gregor taught me – take care of the basics and manage manageable stress so you have energy for the unimaginable and unmanageable. Hone your and your family’s routine of good habits – fluids, food, exercise, rest. Keep connecting with whatever community you belong to. Invite a couple more people in. In our town we have 6 pm connect. Look out your window, sit on your stoop and wave, say hello. We each need to find a source of realistic honesty, compassion, and leadership to guide us, advocate for us, and reassure us. Let us know what you find.  I will share.

15-minute advantage

Another point: 61 million people in the US have different abilities than you, temporarily able-bodied people. We have a 15-minute advantage on you. We know how deal with unwelcome, strange circumstances.  We know how to ask for and offer help. We know how to build a team. We know how to navigate from a chair, a bed, a fog, in pain, with canes. We know how to live at peak performance with a dizzying array of conditions, circumstances, and confusions. We have a 15-minute advantage on you. Don’t under-estimate the importance of fifteen minutes You need us. We want to share and teach. We have much to share and teach. We are not expendable. When you have the opportunity and bandwidth, reach out to the less able-bodied. Spend some time with us. Connect, listen, learn, and appreciate. You won’t have far to look for us. We’re everywhere.  We are in this together, me and you and the world.

I don’t feel better. That’s OK.

After the word from our sponsor, Abridge, we’ll hear a tune from Alberta Hunter My Castle’s Rockin’ recorded in 1978 with Eddie Heywood on piano: Stash Records Classic Alberta Hunter – The Thirties.

Now, more than ever push the big pink button and record the conversation with your clinician. Read the transcript or listen to clips when you get home. Check out the app at abridge.com or download it on the Apple App Store or Google Play Store. Record your health care conversations.

Alberta Hunter’s My Castle’s Rockin’ 

 

Danny van Leeuwen

Danny van Leeuwen

Patient/Caregiver activist empowering people as they travel toward best health

2 Comments

  • Ellen says:

    Thank you, Danny. This gave me permission to let go and weep in a way I didn’t know I needed to. I appreciate the reminder that now is the time for us all to embrace our humanness – in its frailty, beauty, pain and messiness.

  • Susan Spivack says:

    Wow, just great Danny–I turned on my audio for this one, and love the tune you’re ending with. So powerful and wellsaid.
    Many thanks! Much love……hugs wide as the distance between us,
    Sue

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.