Esosa Ighile raising young women with Sickle Cell Disease to be commanders of their own ship. The whole family feels the pain of their pain. A fight for health equity. Welcome to this ninth episode in a series about Young Adults with Complex Medical Conditions Transitioning from Pediatric to Adult Medical Care.
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
inclusion health team Care Partner advocacy consent research informed decision-making shared decision making storytelling PCORI health partners culture care planning EHR Young Adult threshold technology Pain ePatient decision-making adherence Advocates patient experts goals policy Just-in-Time decisions Best health questions learning evidence CDS Impact Learning resilience innovation coaching relationships health goals disability superpower Blue Button interoperability caregivers Failure portal clinical decision support Recovery People at the Center of Care podcasting caregiving engagement PTSD wheelchair lived experience Holocaust transitions patient engagement dementia Data care coordination Exercise trust entrepreneur music multiple sclerosis CEO of Your Health Sickle Cell self-care Nursing coronavirus Covid19 MS pediatrics apps tpfalumni habits Medical Record EMR Behavioral Health chronic illness sax stress mindfulness Health choices palliative care community improv Fibromyalgia Health equity PHR grief Abridge pain management chronic pain young adults leadership Rest Determinants of Health health literacy end-of-life magic lever