AdvocateCaregiverConsumerePatientLeaderResearcherWritten Only Experiences, experiments, reflection, actionThis week people told me stories about a moment in their health journey - Symptoms,…DannyApril 17, 2016
AdvocateCaregiverClinicianConsumerePatientInformaticistResearcherWritten Only Not collected? Not studied.What do people consider to be clinical data, when they're not wearing the hat of…DannyFebruary 21, 2016
AdvocateCaregiverePatientLeaderResearcherWritten Only Learning from What Doesn’t WorkNotice how young kids learn to walk. Try, fail, try again, over and over until…DannyJanuary 17, 2016
CaregiverClinicianConsumerePatientFamily manLeaderMusicianWritten Only Last Post, New YearLast post of 2015. Reviewing the year in 51 blog posts, we discussed: Death and…DannyDecember 28, 2015
AdvocateCaregiverClinicianePatientInformaticistResearcherWritten Only Patient Reported Outcome Measures (PROM)When I first heard about Patient Reported Outcome Measures (PROM) I thought they were talking…DannyDecember 21, 2015
AdvocateCaregiverClinicianConsumerePatientResearcherWritten Only The jumble of researchNext week, I'll be attending PCORI's (Patient Centered Outcomes Research Institute) Communication and Dissemination Advisory…DannySeptember 27, 2015
CaregiverClinicianePatientFamily manLeaderWritten Only Embracing your friend, ignorancePondering ignorance this week. Not so much the ignorance we see with politicians (although that…DannyAugust 30, 2015
CaregiverePatientWritten Only Personal Experiments to Reduce Uncertainty and Manage HealthHealth consists of one experiment after another. What works? One of my challenges is neuropathy. People…DannyJune 20, 2015
AdvocateCaregiverClinicianConsumerePatientInformaticistWritten Only Managing Uncertainty – A Magic Lever for Best HealthPeople at the center of care (individuals, caregivers, family networks, and healthcare professionals) crave knowledge…DannyMay 31, 2015
AdvocateConsumerLeaderWritten Only PCORI- Patient Centered Outcomes Research – and usYou may remember that I'm a Patient Reviewer for PCORI (Patient Centered Outcomes Research). PCORI,…DannyJuly 21, 2013