Wow, four strokes by age 39. Quite a record for a sportswoman. A story about trust. First, no benefit of the doubt by the first diagnosing person thinking that Lisa was a drugged-out college student. Then Lisa’s trust in herself as a patient expert. Experience and engagement reinforce each other and builds confidence. No mystery that I appreciate I’m “good at naps.” So far, I don’t know how else to introduce young people to choices about health, wellness, or illness other than including them when someone in their lives is actively making such choices. Lead by example. Also, no mystery that I appreciate Lisa’s emphasis on telling her story. I’m delighted to be a channel.
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
perception consent multiple sclerosis Rest People at the Center of Care Pain superpower medication HIT Behavioral Health Mentoring standards ONC improv Politics evidence Surveys Outcomes threshold community balance culture The Quadruple Aim leadership Communication interoperability resilience Pharma magic lever research transitions Fibromyalgia music Community Health safety chronic pain choices health team PHR adherence Determinants of Health Health Planning storytelling innovation grace palliative care questions Data cost mindfulness engagement Nursing EMR relationships care planning disability PROM fear caregiving grief portal caregivers policy end-of-life customer service learning Advocates goals ePatient employment PCORI Giving Best health immigrants haiku entrepreneur simulation Simplicity shared decision making Care Partner informed decision-making Blue Button access Exercise health literacy Standard Health Record catalyst Recovery sax health partners MS Just-in-Time decisions Pregnancy Medical Record lived experience technology OpenNote social media Quality Measures habits