Welcome to the Health Hats podcast series about young adults transitioning from pediatric to adult medical care. In this series, I interview young adults with complex medical conditions, their parent or guardians, point-of-care clinicians caring for these young adults, and whoever else I find of interest in this fascinating, frustrating, heart-breaking, and inspiring world.
This second podcast of the series is with Sara Lorraine Snyder, a fine, eloquent, young woman who has lived her entire life with chronic medical issues. She’s learning to drive her own healthcare and manage the transition to adult medical care.
“If you were playing with the team for football or whatever and then they come you come in the next practice and half of your team is completely new people that you don’t even know and then you don’t know how to effectively work with that team so that in the end of the day you can win or like achieve, whatever you need to.” Sara Lorraine Snyder
- Blood, sweat, tears shared by two.
- Helping one end and another begin.
- A disaster that ultimately gives back.
- Hearts clubbed by diamonds in spades.
- We learned, we cried, we continued.
Denise Brown of caregiving.com asked caregivers for their 6-word story about caregiving. Brilliant!
Welcome to Men Caregivers, Part 2, the Panel. Part 1 was interviews with the panel, Ben Carter, Patrick Egan, Jolyon Hallows, and yours truly. All at the National Caregiving Conference in Chicago in November 2018.
Here are some of our 6-word stories:
- We did it because we could
- Pillows, pills, poop, piss, and pain
- 20 years a caregiver. I adapted.
- Key word isn’t ‘men’, it’s ‘caregiving’
- Personal care? It depends? Mother, wife?
- Managing the Dis Ease of Disease