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Overflowing with gratefulness in the New Year. Connection, family, music, activism. Sobered by grief for 1000s of lives lost each day. Theme this year: Trust. Read, listen, or watch this episode. Read More
Podcast: Play in new window | Download (Duration: 41:08 — 38.6MB) | Embed
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Transparent communication in healthcare. Connection, trust, control. Research to practice. Change management. Community organizing. Liz Salmi tells her story about OpenNotes.
Podcast: Play in new window | Download (Duration: 13:14 — 13.1MB) | Embed
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Diversity within diversity. Research informs action. Planting seeds of co-learning & co-production. Doing my own work to address health inequities and racism.
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How can laypeople find up-to-date, trustworthy answers to questions they have about living safely in an emergency, when they have them, in a useful manner? Part 1: a person-first approach for researchers & content creators to help people and their communities find trusted guidance to answer their questions about living safely in a Covid-19 world.
Podcast: Play in new window | Download (Duration: 54:25 — 49.1MB) | Embed
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Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ
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Why can’t we fill in personal data and routine community COVID stats into a web form and calculate our risk of infection and mortality? Anyone working on it? Plus another dose of unintended consequences. A brief episode with Health Hats.
Podcast: Play in new window | Download (Duration: 46:01 — 32.2MB) | Embed
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Jessica DeFrank about chronic pain, reducing opioid use, research to action, risk tolerance, technology pre- and post-Covid, informed decision-making & families
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Engage academia and hospitals with patient family advisors. Not rocket science, not window dressing. Basic stuff, yet a challenge. With James Harrison at UCSF.
Podcast: Play in new window | Download (Duration: 41:14 — 33.3MB) | Embed
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Finding trusted evidence-informed guidance in worlds of chronic illness, clinician, researcher. Inclusion, equity, choices, community. iConquerMS. Conversation with Cherie Binns.
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Helping people trying to live safely in COVID world? Listen to people, hear their questions. Can we find trusted evidence-based guidance? A daunting challenge! Collecting materials for a foundation. If not us, who?
