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patient partner | Danny van Leeuwen Health Hats

Independent Community Benefit Practice

By | Advocate, ePatient, Leader, Podcasts, Researcher | No Comments

Michael Mittelman received three kidneys via transplant, his current kidney from a living donor, his mother. He identifies as an advocate for organ donation, specifically, living organ donors. He also works across disease areas to help companies understand and involve patients. He cares deeply about access and equity in healthcare. For this episode, I’m going to test calling our work as advocates, activists, and partners, an Independent Community Benefit Practice.

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More Patient Experts at the Table

By | Advocate, ePatient, Podcasts | No Comments

Patient expert, co-investigator, patient partner, subject matter expert, patient advocate, patient/caregiver activist. Many labels. Whatever you call us, invite those of us with different and unique experience, skills, and circumstances to sit at decision-making tables. Then treat us as equals and respect us. Then do something with what we offer.

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