AdvocateCaregiverConsumerePatientFamily manWritten Only Adjusting to new chronic illnessAdjusting to new chronic illness involves moving away from traditional medical/doctors/health care system to controlling controllable…DannyFebruary 8, 2015
CaregiverConsumerePatientFamily manWritten Only Take a break – nowToday I'm bone tired. Tired of grief, tired of having MS. Interesting how physical health…DannyJanuary 25, 2015
AdvocateCaregiverConsumerePatientWritten Only Labels – DisLabelsI'm disabled. Iidentifyashaving a disability. Someone else says I'm disabled. Do Ihave a disability? I'm…DannyJanuary 11, 2015
AdvocateCaregiverConsumerePatientWritten Only Disclosure – Revealing health issuesDisclosure: The act of revealing something. How does disclosure impact life for the disabled, chronically…DannyFebruary 3, 2014
CaregiverePatientWritten Only Test driving – Still shoppingI test drove a new neurologist this week. I'm still shopping. Two factors affected my…DannyNovember 3, 2013
AdvocateCaregiverClinicianConsumerLeaderMusicianWritten Only Honoring and aligning silosTeaching in a nursing leadership academy this week about acting as a change agent or…DannyOctober 20, 2013
ClinicianConsumerePatientWritten Only Finding a New Doctor, Oh My! Part 1My neurologist has moved away. I'm grieving. Granted he was a curmudgeon with mixed bedside…DannySeptember 29, 2013
ePatientWritten Only Things That Go Bump in the NightFrom goulies and ghosties and long-leggedy beasties And things that go bump in the night…DannySeptember 22, 2013
ePatientWritten Only DisabledStarted a new job - first day - a form asked if I was disabled…DannyMay 1, 2013
AdvocateCaregiverePatientFamily manWritten Only Clinicians are from Mars, e-Patients are from VenusAre clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can…DannyApril 10, 2013