Tag

Holocaust | Danny van Leeuwen Health Hats

Share the Stories. Help the Helpers.

By ePatient, Leader, Family man, Podcasts One Comment

Stories are mirrors. It’s really about us. Our stories matter. Tell your story. As much as you can. Meld the stories together. Share the tragedy. Share the silver linings. Honor the caregivers. Help the helpers.

Read More

Mind Body Spirit. Empathy and Social Justice.

By Advocate, Family man, Podcasts No Comments

In Ecuador, I found there were the traditional indigenous views of health melding with Western medicine. So, your physical and melding with Christianity as well. Your physical, spiritual, and mental health felt much more interwoven. You might see a shaman and pick up some medications from your doctor on your way to the church to say a prayer.

Read More

Illness-Induced PTSD. Not Only Patients

By Advocate, Caregiver, ePatient, Clinician, Podcasts One Comment

People who live with long term, complex chronic illness suffer from extreme stress and trauma together and alone. ‘Live with’ meaning they’re my diagnoses or I’m caring for someone with those challenges. ‘Caring for someone’ can be professionals or family and non-family, and sometimes community. The intensity of acute crises, rehabilitation, and maintenance (living life) all cause unforgettable and deep-rooted stress. Crazy-making stress.  Illness-induced Post Traumatic Stress Disorder (PTSD). To explore PTSD, I asked Nancy Michaels to join us. She spent 6-months in the ICU, two-months in a coma, with a liver transplant and brain surgery to boot. She most remembers dignity and control or lack thereof. It affected more than her. Listen in.

Read More

Camino de Santiago. Pilgrimage of sounds.

By Advocate, ePatient, Family man, Podcasts 2 Comments

I find myself on a pilgrimage. I thought I was tagging along with my wife’s hiking group through rural, Northern Spain as a disabled person. But instead, I find myself on a pilgrimage. A pilgrimage of sounds. Buen Camino

Read More

May the Force…

By ePatient, Family man No Comments

Tragedy: the common unifying force of life, no matter your genetics, your circumstances, your behavior, your health. As you season the likelihood of experiencing tragedy increases. A tragedy can be a death, diagnosis of serious illness, break up, job loss, legal difficulties, downsizing, loss of a contract, loss of key staff, loss, loss, loss. Read More