Tag

healthcare

Mar 31 2019
1

Looking Out for Each Other

By | Advocate, ePatient, Podcasts | No Comments

Podcast: Play in new window | Download (Duration: 37:00 — 26.5MB) | Embed

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Welcome to this fourth in a series about Young Adults with complex medical conditions transitioning from pediatric to adult medical care. This interview with mother and daughter, Alexis and Sara Snyder, exploring their evolving relationship. Transitioning to plans about Sara with Sara. Sara had to know her body well and communicate what she knew. I’m impressed that Sara was pretty clear about what she wasn’t clear about. Sara values her mom’s health and well-being. Read More

Mar 24 2019
0

Not one transition. Many.

By | Advocate, Caregiver, ePatient | No Comments

Podcast: Play in new window | Download (Duration: 34:24 — 29.3MB) | Embed

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Alexis Snyder, a parent of a teenager with chronic complex health issues since birth, shares her journey. She speaks about accepting what is, helping her daughter prepare to manage the many transitions in medical care from infancy to adulthood, the challenges of a siloed medical system, and a fear of losing control of her daughter’s health as she let’s go of responsibility. Loving, determined, vulnerable. The third interview in a series on Young Adults with Complex Conditions Transitioning from Pediatric to Adults Medical Care. Read More