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grief | Danny van Leeuwen Health Hats

2021 Holiday Letter: Trust

By Advocate, Caregiver, Clinician, ePatient, Family man, Leader, Musician, Podcasts, Researcher 2 Comments

Overflowing with gratefulness in the New Year. Connection, family, music, activism. Sobered by grief for 1000s of lives lost each day. Theme this year: Trust. Read, listen, or watch this episode. Read More

Covid-19: End-of-Life Choices

By Advocate, Caregiver, ePatient, Family man, Podcasts No Comments

At least 67,000 individuals have died of Covid19 in the US and 244K worldwide so far. Each death is a family’s grief. How do we advocate for ourselves, each other? Palliative care = feeling less miserable. Have you discussed end-of-life and palliative care with your family? Do it now.

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Temporarily Able-Bodied People. We’re in This Together.

By Advocate, Caregiver, Clinician, ePatient, Family man, Podcasts 2 Comments

Covid19. Sad, angry, grieving. No grief without love. People with different abilities have a 15-min advantage on the temporarily able-bodied. Connect, learn, appreciate.

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Illness-Induced PTSD. Not Only Patients

By Advocate, Caregiver, Clinician, ePatient, Podcasts One Comment

People who live with long term, complex chronic illness suffer from extreme stress and trauma together and alone. ‘Live with’ meaning they’re my diagnoses or I’m caring for someone with those challenges. ‘Caring for someone’ can be professionals or family and non-family, and sometimes community. The intensity of acute crises, rehabilitation, and maintenance (living life) all cause unforgettable and deep-rooted stress. Crazy-making stress.  Illness-induced Post Traumatic Stress Disorder (PTSD). To explore PTSD, I asked Nancy Michaels to join us. She spent 6-months in the ICU, two-months in a coma, with a liver transplant and brain surgery to boot. She most remembers dignity and control or lack thereof. It affected more than her. Listen in.

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