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disability | Danny van Leeuwen Health Hats

Imagine: Leverage Abilities. Access Better Solutions.

By Advocate, Consumer, ePatient, Informaticist, Podcasts No Comments

Create an inclusive, accessible co-working space for aspiring entrepreneurs with disabilities, small startups, or groups that serve the disability community. QuirkLaabs. hollarhype. Puffin Innovations.

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Inspire Me Once, Inspire Me Twice

By ePatient, Family man, Musician, Podcasts No Comments

Chat with Sara Lorraine Snyder: ‘As a person living with a disability, we’re already used to the world being able to hurt us or bring us down, whether from other people judging or saying things or your body being funky and doing not behaving in an optimal way. Just knowing that now there’s something, especially for people like me living with lung conditions and whatnot that there’s something that can very well take us out if it so pleased.’

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Days 6-12 Camino de Santiago. Rejuvenated, inspired, not yet peaked

By ePatient, Family man, Podcasts One Comment

I just can’t believe how much I’m enjoying just listening to the birds and listening to the wind.  It quiets my mind. I know you’re shocked to know but I have a very active mind. It just never stops, which works some of the time, if not most of the time.  But it’s nice to quiet it and just listen. Buen Camino

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I am Not My Condition

By ePatient One Comment

I’m Disabled. Who labels themselves? Feels like crap. I applied for disability. Needed a psychological evaluation. Spent an hour with a psychologist. I spent that hour telling her about the effect MS has had on my life. MS is seriously annoying…. Came out feeling terrible.  “Oh man, I’m disabled. My life has been so disrupted. I can’t do what I once did. Woe is me.” Lost my pathological optimism for a day. I’ve had to train myself over the years to feel sorry for myself. “OK 5 min, feel sorry.” Enough of that. It’s too boring. When I feel sorry for myself my symptoms are worse. Direct correlation.

Lots of people have it worse than me, much worse.   Read More