Wow, four strokes by age 39. Quite a record for a sportswoman. A story about trust. First, no benefit of the doubt by the first diagnosing person thinking that Lisa was a drugged-out college student. Then Lisa’s trust in herself as a patient expert. Experience and engagement reinforce each other and builds confidence. No mystery that I appreciate I’m “good at naps.” So far, I don’t know how else to introduce young people to choices about health, wellness, or illness other than including them when someone in their lives is actively making such choices. Lead by example. Also, no mystery that I appreciate Lisa’s emphasis on telling her story. I’m delighted to be a channel.
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
coaching goals chronic pain health literacy Advocates MS engagement Health choices shared decision making ePatient mindfulness lived experience Care Partner Holocaust sax consent PHR technology disability Behavioral Health music Best health palliative care EMR safe living patient engagement apps young adults pediatrics Health equity family caregivers podcasting person-first pain management People at the Center of Care evidence learning adherence informed decision-making Pain CDS chronic illness PCORI public health Determinants of Health community Data self-care Sickle Cell caregivers questions Blue Button Exercise innovation Just-in-Time decisions end-of-life health team Covid-19 Community Health relationships health partners coronavirus multiple sclerosis threshold policy advocacy Nursing CEO of Your Health health goals research clinical decision support wheelchair Recovery inclusion transitions Impact Learning magic lever entrepreneur Medical Record trust tpfalumni Covid19 leadership Rest decision-making EHR patient experts Failure resilience care planning Young Adult superpower caregiving storytelling interoperability portal habits stress grief improv