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Camino de Santiago | Danny van Leeuwen Health Hats

CDS. Listen, Learn, Informed Choice.

By Researcher, Informaticist, Podcasts No Comments

How can we scale patient-caregiver engagement in CDS (Clinical Decision Support)? CDS as learning health systems? Interview with Lacy Fabian at MITRE and Ed Lomotan at AHRQ. CDS Connect a library of medical recommendations made useful for programming into electronic records, apps, and software so patients, caregivers, and clinicians can use them as they make choices together.

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Camino de Santiago. Pilgrimage of sounds.

By Advocate, ePatient, Family man, Podcasts 2 Comments

I find myself on a pilgrimage. I thought I was tagging along with my wife’s hiking group through rural, Northern Spain as a disabled person. But instead, I find myself on a pilgrimage. A pilgrimage of sounds. Buen Camino

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Sound and noise. Senses and voice.

By Advocate, ePatient, Podcasts No Comments

Hey there, glad you could join me. I’d like to pause and take stock of the past six months and look a bit to the future. We’re in the middle of a series with Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care. I’ve published 7 episodes in this series. I’m taking a brief break on the series and traveling to Spain. While we’re here together I’ll look back at the series, talk about Spain, and reflect on my patient/caregiver activism journey. Read More