How do we start a journey? We decide we’re going to work, home, to Boston, the Cape, a destination. Then we plan the route and adjust it as impediments arise (traffic, construction, weather). Same for our health journey – where are we headed? For me since I have a chronic, deteriorating condition, I’m headed to a place that’s not worse – maintain function, keep a positive outlook, and keep fitting into my hand-made vests. These are my health journey destinations. I struggle in my very busy life, to keep my destination in mind. I keep a focus on those activities, habits, and treatments that are likely to get me to my destination – working, exercise, diet, music, family. I maintain function by walking, triking, blowing my baritone sax, working creatively, continual learning. I keep my positive outlook by controlling the circles I travel in, spending time with my family, and working with my doctors on my pharmaceutical intake. I avoid popping buttons on my hand-made vests with exercise and calorie control. Sometimes I’m overwhelmed with keeping this all together with the overlay of fatigue I can feel. The art for me is stopping doing some of the things I really like doing because it doesn’t specifically help me on my journey. Don’t volunteer for something, back out of another thing if I can, don’t eat that great piece leftover of birthday cake in the fridge. Keeping the end in mind.
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
Mentoring Best health simulation health team Surveys Blue Button lived experience research safety Behavioral Health questions informed decision-making innovation Communication Quality Measures customer service entrepreneur perception evidence Data ePatient choices social media Advocates Just-in-Time decisions Pharma engagement Standard Health Record resilience cost goals The Quadruple Aim technology portal leadership palliative care Fibromyalgia Pain Health Planning storytelling employment Politics immigrants disability Care Partner Determinants of Health Nursing Community Health PCORI community sax Recovery magic lever catalyst habits medication interoperability adherence end-of-life threshold transitions music EMR ONC superpower balance learning caregiving caregivers Exercise PROM fear chronic pain grace relationships MS HIT care planning Simplicity Outcomes standards access consent Medical Record policy health partners culture improv mindfulness haiku shared decision making OpenNote People at the Center of Care Pregnancy multiple sclerosis PHR grief health literacy Giving Rest