MHQP Resources for Empowering Patients

By

MHQP Resources for Empowered Patients

Resource Type: Website

Thumbnail:

Members of MHQP’s Consumer Health Council – experienced patient advocates and activists – have created this website to share their knowledge and insights with other patients. The site lists the tools, guidelines, and information you may need to manage your health, interact with clinicians and the healthcare system, and find answers to questions you may have. The articles and links included under each topic will help you become a more empowered and engaged patient/consumer of healthcare services.

Thoughts:

The Massachusetts Health Quality Partnership created a rich resource for patients and caregivers learning to lead as they manage their health journeys. Well done.

Links:

http://www.mhqp.org/for-patients/resources-for-empowered-patients/

http://www.facebook.com/pages/Watertown-MA/Massachusetts-Health-Quality-Partners-MHQP/244578103090

https://twitter.com/MHQP

https://www.linkedin.com/company/massachusetts-health-quality-partners

Society for Participatory Medicine

By

Society for Participatory Medicine

Resource Type: Organization

Thumbnail:

Participatory Medicine is a movement in which patients and health professionals actively collaborate and encourage one another as full partners in healthcare

Thoughts:

Great networking for people who want to drive their own train

Links:

https://participatorymedicine.org/

https://twitter.com/S4PM

https://www.facebook.com/groups/participatorymedicine/

Patient-Centered Clinical Decision Support Learning Network

By
PCCDS

Patient-Centered Clinical Decision Support Learning Network

Resource Type: Organization

Thumbnail:

The Patient-Centered Clinical Decision Support Learning Network (PCCDS Learning Network) is bringing together stakeholders to address the opportunities and challenges around dissemination of evidence-based findings through patient-centered clinical decision support (PCCDS). Its central focus is providing a forum for stakeholders to address opportunities and challenges around PCCDS. Sponsored and funded by the Agency for Healthcare Quality and Research (AHRQ)

Thoughts:

A fine collaboration of CDS stakeholders – researchers, developers, implementers, clinicians, and patients with a resource center, patient perspective blog, and education materials.

Links:

https://pccds-ln.org/

https://twitter.com/pccdsln

Patient Activation Measure (PAM)

By

Patient Activation Measure (PAM)

Resource Type: Article

Thumbnail:

Controlling costs and achieving health care quality improvements require the participation of activated and informed consumers and patients. We describe a process for conceptualizing and operationalizing what it means to be “activated” and delineate the process we used to develop a measure for assessing “activation,” and the psychometric properties of that measure.

Hibbard, J. H., Stockard, J., Mahoney, E. R., & Tusler, M. (2004). Development of the Patient Activation Measure (PAM): Conceptualizing and Measuring Activation in Patients and Consumers. Health Services Research, 39(4 Pt 1), 1005–1026. http://doi.org/10.1111/j.1475-6773.2004.00269.x

Thoughts:

Very well done. Required reading

Links:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1361049/

IHI Tools to Support Patient Engagement

By

IHI Tools to Support Patient Engagement

Resource Type: Tools

Thumbnail:

The goal is to focus on patient engagement and emphasize the importance of the relationship between providers and patients and their families. In honor of this week, I’d like to highlight some of the resources IHI has developed for care providers, middle managers, executives, boards, and others to encourage patient and family engagement.

PROMISES (Proactive Reduction of Outpatient Malpractice: Improving Safety, Efficiency, and Satisfaction) Project

Partnering in Self-Management Support: A Toolkit for Clinicians

Strategies to improve communication between providers and patients during the office visit.

Thoughts:

I support the vision of The Institute for Healthcare Improvement (IHI), founded by Don Berwick: Everyone has the best care and health possible.

Links:

http://www.ihi.org/communities/blogs/_layouts/15/ihi/community/blog/itemview.aspx?List=0f316db6-7f8a-430f-a63a-ed7602d1366a&ID=46

https://twitter.com/TheIHI

https://www.facebook.com/TheIHI/

https://www.youtube.com/user/IHIvideo

EU Patient Empowerment Campaign

By

EU Patient Empowerment Campaign

Resource Type: Website

Thumbnail:

EPF officially launched a major one-year campaign on Patient Empowerment on 20-21 May 2015. We will work in concert with the health community to promote understanding of what patient empowerment means from the patient perspective among political decision-makers and health stakeholders.
“Patients with chronic conditions are often referred to as the most under-used resource in the health system while patient-centered care models have demonstrated better quality of care as well as potential long-term cost-efficiencies. Too many patients are still struggling to get the support they need to become equal partners in care. To make real progress, we need to make patient empowerment a priority, starting with the development of an EU-wide strategy and action plan”

Thoughts:

No need to reinvent the wheel. Especially nice graphic

Links:

http://www.eu-patient.eu/campaign/PatientsprescribE/

https://twitter.com/eupatientsforum

https://www.facebook.com/EuropeanPatientsForum

What’s the Problem with the Experience of People at the Center of Care?

By
Logo for Danny van Leeuwen Health Hats

Health Hats: What’s the Problem with the Experience of People at the Center of Care?

Resource Type: Blog post

Thumbnail:

Wearing my many hats: e-patient, caregiver, nurse, informaticist, and leader, I am blessed with mostly positive experiences on my health journey.  At worst, my experiences are seriously annoying. This week, attending a benefit for MITSS (Medically Induced Trauma Support Services), I’m reminded that not everyone is so lucky. As I scan the industry several problems with the experience of the people at the center of care (patients, caregivers, clinicians, direct care and support staff) jump out

Thoughts:

Links:

https://www.health-hats.com/whats-the-problem-with-the-experience-of-people-at-the-center-of-care/

https://www.linkedin.com/in/healthhatsdannyvl/

https://twitter.com/HealthHats

https://www.youtube.com/user/dvanleeu

https://www.health-hats.com/

Increasing uptake of comparative effectiveness and patient-centered outcomes research

By

Increasing uptake of comparative effectiveness and patient-centered outcomes research

Resource Type: Article

Thumbnail:

The goal of comparative effectiveness research (CER) and patient-centered outcomes research (PCOR) is to improve health outcomes by providing stakeholders with evidence directly relevant to decision making. In January 2017, the Pharmaceutical Research and Manufacturers Association Foundation, alongside the Academy for Managed Care Pharmacy, organized a conference aimed at engaging experts and opinion leaders representing clinicians, patients and payers to identify and discuss barriers and strategies to enhancing uptake and use of CER/PCOR. This report summarizes the conference discussion in the following sections: preconference survey; summary of barriers and strategies to the uptake of CER/PCOR identified by conference attendees; and future perspectives on the field.

Thoughts:

Links:

https://www.futuremedicine.com/doi/10.2217/cer-2017-0060

Participatory Medicine as Revolution!

By

Participatory Medicine as Revolution! Think Critically! Communicate!

Resource Type: Blog post

Thumbnail:

In 2009 Society of Participatory Medicine co-founder, Sarah Greene wrote about ‘praxis’- active learning, or problem-solving using real-life situations, is necessary for the individual to translate theory into action or practice – the similarities of participatory medicine and education.

Thoughts:

The foundation and principles of participatory medicine. A most valuable two minute read. An oldie, but goodie.

Links:

https://participatorymedicine.org/epatients/2009/05/participatory-medicine-as-revolution-think-critically-communicate.html