What’s the Problem with the Experience of People at the Center of Care?

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Logo for Danny van Leeuwen Health Hats

Health Hats: What’s the Problem with the Experience of People at the Center of Care?

Resource Type: Blog post

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Wearing my many hats: e-patient, caregiver, nurse, informaticist, and leader, I am blessed with mostly positive experiences on my health journey.  At worst, my experiences are seriously annoying. This week, attending a benefit for MITSS (Medically Induced Trauma Support Services), I’m reminded that not everyone is so lucky. As I scan the industry several problems with the experience of the people at the center of care (patients, caregivers, clinicians, direct care and support staff) jump out

Thoughts:

Links:

https://www.health-hats.com/whats-the-problem-with-the-experience-of-people-at-the-center-of-care/

https://www.linkedin.com/in/healthhatsdannyvl/

https://twitter.com/HealthHats

https://www.youtube.com/user/dvanleeu

https://www.health-hats.com/

Chronic Pain Self-Management Program

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Chronic Pain Self-Management Program

Resource Type: Website

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The Chronic Pain Self-Management Program (CPSMP) is a six week workshop for those living with chronic pain. Over the course of the sessions, participants will learn about:

*Techniques to deal with problems such as frustration, fatigue, isolation, and poor sleep
*Appropriate exercise for maintaining and improving strength, flexibility, and endurance
*Appropriate use of medications
*Communicating effectively with family, friends, and health professionals
*Nutrition
*Pacing activity and rest
*How to evaluate new treatments

Examples of chronic pain conditions are: chronic musculo-skeletal pain (such as neck, shoulder, back pain, etc.), fibromyalgia, whiplash injuries, chronic regional pain syndromes, repetitive strain injury, chronic pelvic pain, post-surgical pain that lasts beyond 6 months, neuropathic pain (often caused by trauma), or neuralgias (such as post-herpetic pain, and trigeminal neuralgia), and post-stroke or central pain. The CPSMP may also benefit those who have conditions such as persistent headache, Crohn’s disease, irritable bowel syndrome, diabetic neuropathy, or those who experience severe muscular pain due to conditions such as multiple sclerosis.

Thoughts:

Comprehensive, practical, vetted

Links:

http://www.eblcprograms.org/evidence-based/recommended-programs/chronic-pain-self-management

Caregiving.com

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caregivingcom

Caregiving.com

Resource Type: Organization

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When you care for a family member or friend, we care for you. We’re a community of supportive individuals caring for a family member or friend. We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving. Create your free account to join our daily, weekly and monthly chats, to start your blog and to connect with others who understand.

Thoughts:

As a caregiver I find caregiving.com to be varied and deep. I especially like the 6 stages of caregiving (I May Help, I am Helping, My Role Has Ended, etc.) I was delighted to hear a podcast on caregiver sexuality. Denise Brown leads this fine effort.

Links:

https://www.caregiving.com/

https://twitter.com/caregiving

https://www.facebook.com/CaregivingSupport/

Co-Architecting Healthcare Transformation

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How Leading Health Systems Put Patients and Families at the Forefront of Design

Resource Type: Research Study

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Research study by the Experience Innovation Network, part of Vocera,
examining how hospitals and health systems engage patients and families
as partners in designing and developing the future of caring.
• Engage patient-family partners across the spectrum from strategy to operations.
• Let patient-family partners influence both the what and the how of transformation.
• Prepare both patient-family partners and team members for effective collaboration.
• Create intentional strategies to include under-represented partners.
• Value patient-family partnership appropriately.

Thoughts:

A comprehensive view of the range of patient and family engagement in the governance, design, operations, and learning of health systems. First, they listened. Liz Boehm and Evan LaBranche communicate their findings well.

Links:

https://www.vocera.com/public/ein/research-studies/Report-Co-Architecting-Healthcare-Transformation-2018.pdf

https://www.linkedin.com/company/vocera-comm/

https://twitter.com/VoceraComm