MHQP Resources for Empowering Patients

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MHQP Resources for Empowered Patients

Resource Type: Website

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Members of MHQP’s Consumer Health Council – experienced patient advocates and activists – have created this website to share their knowledge and insights with other patients. The site lists the tools, guidelines, and information you may need to manage your health, interact with clinicians and the healthcare system, and find answers to questions you may have. The articles and links included under each topic will help you become a more empowered and engaged patient/consumer of healthcare services.

Thoughts:

The Massachusetts Health Quality Partnership created a rich resource for patients and caregivers learning to lead as they manage their health journeys. Well done.

Links:

http://www.mhqp.org/for-patients/resources-for-empowered-patients/

http://www.facebook.com/pages/Watertown-MA/Massachusetts-Health-Quality-Partners-MHQP/244578103090

https://twitter.com/MHQP

https://www.linkedin.com/company/massachusetts-health-quality-partners

Changeful

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Changeful

Resource Type: App

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The Transformative Power of Storytelling
Changeful is a mobile, video-based, behavior change-oriented platform designed to help alleviate the high medical costs incurred by family caregivers and professional care workers.

Thoughts:

Changeful provides payers, managed care and professionals caregiving organizations with participant insights and robust, anonymized data in a customizable dashboard.

Changeful engages caregivers with storytelling videos dealing with the problems they face every day. Tailored videos provide specific, actionable information. Alerts, live coaching, and an in-app social connection platform keep them motivated and involved.

Medical content is informed by the University of Southern California Keck School of Medicine.

Links:

Tunza

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Tunza

Resource Type: App

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Tunza is a software platform making it easy for friends to help caregivers in meaningful ways during moments of crisis. From meals and transportation to emotional support.

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Tunza streamlines the process associated with organizing a network of supporters and managing everyday tasks. Friends can make task-based microdonation purchases from our network of service providers and online merchants.

Links:

http://tunza.net/

Carium

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Carium

Resource Type: App

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Carium guides users to better health by getting to know them and their goals and leveraging behavioral medicine expertise to provide personalized guidance, support, and resources. Carium enables stronger connections with family and caregivers so they can be involved and stay informed as a patient’s proxy, and with doctors, fitness coaches, and others who contribute to a users’ health so they’re on the same page and easy to reach.

Thoughts:

Carium gains a comprehensive view of each user — through clinical EMR data, patient-generated data from wearables, the environment, and questions offered at contextually relevant moments — and provides personalized, timely notifications and actionable insights. Carium also facilitates asynchronous care delivery through voice, text, photos, and video.

Links:

https://www.carium.com/

The Difference Collaborative

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The Difference Collaborative

Resource Type: Presentation

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Understanding the experience of Nurse family caregivers from a mission-driven, multidisciplinary team that helps employers understand and improve the experience of employees who serve as family caregivers and their colleagues.

Thoughts:

Our esteemed colleagues Geri Lynn Baumblatt, George Karavattuveetil, Caol Zindler, Olga Masevich, Pete Wendel, and Alan Arriaga

Links:

https://www.health-hats.com/difference-collaborative-caregivers-and-the-workplace-v2/

Caregiver Statistics: Demographics

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Caregiver Statistics: Demographics

Resource Type: Article

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65% of care recipients are female, with an average age of 69.4. The younger the care recipient, the more likely the recipient is to be male. 45% of recipients aged 18-45 are male, while 33% of recipients aged 50 or higher are male. [National Alliance for Caregiving and AARP. (2015). Caregiving in the U.S.]
Upwards of 75% of all caregivers are female, and may spend as much as 50% more time providing care than males. [Institute on Aging. (2016). Read How IOA Views Aging in America.]
Male caregivers are less likely to provide personal care, but 24% helped a loved one get dressed compared to 28% of female caregivers. 16% of male caregivers help with bathing versus 30% of females. 40% of male caregivers use paid assistance for a loved one’s personal care. About 14.5 million caregivers are males out of the 43.4% who care for an older family member. [National Alliance for Caregiving and AARP. (2009). Caregiving in the U.S.]

Thoughts:

Rich source of statistics

Links:

https://www.caregiver.org/caregiver-statistics-demographics

Caregiving.com

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caregivingcom

Caregiving.com

Resource Type: Organization

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When you care for a family member or friend, we care for you. We’re a community of supportive individuals caring for a family member or friend. We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving. Create your free account to join our daily, weekly and monthly chats, to start your blog and to connect with others who understand.

Thoughts:

As a caregiver I find caregiving.com to be varied and deep. I especially like the 6 stages of caregiving (I May Help, I am Helping, My Role Has Ended, etc.) I was delighted to hear a podcast on caregiver sexuality. Denise Brown leads this fine effort.

Links:

https://www.caregiving.com/

https://twitter.com/caregiving

https://www.facebook.com/CaregivingSupport/

Alzheimer’s Reading Room

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Alzheimer's Reading Room

Resource Type: website

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‘The Alzheimer’s Reading Room is the number one source of high quality expert information for the entire Alzheimer’s and dementia communities. The goal of the Alzheimer’s Reading Room is to help everyone to better understand, cope, and communicate with a person living with dementia. The Alzheimer’s Reading Room Knowledge Base is searchable and contains more than 5,000 articles. These articles were written to answer questions, and provide solutions to the problems that caregivers face in Alzheimer’s and dementia care.

Thoughts:

Rob DeMarco’s constantly updated website provides an easily searchable repository of resources about Alzheimers and dementia. Articles are vetted and usable. I’ve never seen better. Wish I had moire time to browse.

Links:

https://www.alzheimersreadingroom.com/