MHQP Resources for Empowering Patients

By

MHQP Resources for Empowered Patients

Resource Type: Website

Thumbnail:

Members of MHQP’s Consumer Health Council – experienced patient advocates and activists – have created this website to share their knowledge and insights with other patients. The site lists the tools, guidelines, and information you may need to manage your health, interact with clinicians and the healthcare system, and find answers to questions you may have. The articles and links included under each topic will help you become a more empowered and engaged patient/consumer of healthcare services.

Thoughts:

The Massachusetts Health Quality Partnership created a rich resource for patients and caregivers learning to lead as they manage their health journeys. Well done.

Links:

http://www.mhqp.org/for-patients/resources-for-empowered-patients/

http://www.facebook.com/pages/Watertown-MA/Massachusetts-Health-Quality-Partners-MHQP/244578103090

https://twitter.com/MHQP

https://www.linkedin.com/company/massachusetts-health-quality-partners

Ownership vs Control of Your Health Data

By

Ownership vs Control of Your Health Data

Resource Type: Article

Thumbnail:

An article in Tincture by David Harlow (@healthblawg): “I’m less worried about the name we use for the bundle of rights a patient has with respect to his or her health data than I am about the vehicle available to exercise those rights. The ideal would be a platform that a) empowers patients while b) respecting the roles played in a patient’s health by all members of the patient’s care team and c) recognizing the patient’s right to decide who’s on the team.” “And none of us wants to even think about our health data all that much — or at all, really — unless and until we are sick or injured, or a loved one is sick or injured . . . and then we want our data and we want it now!”

Thoughts:

A brief, clear explanation of ownership of data versus data control as a civil right. Published on Jan 6, 2017. Still relevant.

Links:

https://tincture.io/ownership-vs-control-of-your-health-ace1c8065a2f

https://twitter.com/healthblawg

https://healthblawg.com/