MHQP Resources for Empowering Patients

By

MHQP Resources for Empowered Patients

Resource Type: Website

Thumbnail:

Members of MHQP’s Consumer Health Council – experienced patient advocates and activists – have created this website to share their knowledge and insights with other patients. The site lists the tools, guidelines, and information you may need to manage your health, interact with clinicians and the healthcare system, and find answers to questions you may have. The articles and links included under each topic will help you become a more empowered and engaged patient/consumer of healthcare services.

Thoughts:

The Massachusetts Health Quality Partnership created a rich resource for patients and caregivers learning to lead as they manage their health journeys. Well done.

Links:

http://www.mhqp.org/for-patients/resources-for-empowered-patients/

http://www.facebook.com/pages/Watertown-MA/Massachusetts-Health-Quality-Partners-MHQP/244578103090

https://twitter.com/MHQP

https://www.linkedin.com/company/massachusetts-health-quality-partners

Carium

By

Carium

Resource Type: App

Thumbnail:

Carium guides users to better health by getting to know them and their goals and leveraging behavioral medicine expertise to provide personalized guidance, support, and resources. Carium enables stronger connections with family and caregivers so they can be involved and stay informed as a patient’s proxy, and with doctors, fitness coaches, and others who contribute to a users’ health so they’re on the same page and easy to reach.

Thoughts:

Carium gains a comprehensive view of each user — through clinical EMR data, patient-generated data from wearables, the environment, and questions offered at contextually relevant moments — and provides personalized, timely notifications and actionable insights. Carium also facilitates asynchronous care delivery through voice, text, photos, and video.

Links:

https://www.carium.com/

Recommendations for Building and Maintaining Trust in Clinical Decision Support Knowledge Artifacts

By
PCCDS

Recommendations for Building and Maintaining Trust in Clinical Decision Support Knowledge Artifacts

Resource Type: Article

Thumbnail:

The Patient-Centered CDS Learning Network’s Trust Framework Working Group (TFWG) identified core attributes for trust (“trust attributes”): competency, compliance, consistency, discoverability, evidence-based, feedback and updating, organizational capacity, and patient-centered.

Middleton B, Platt JE, Richardson JE, Blumenfeld BH. Recommendations for Building and
Maintaining Trust in Clinical Decision Support Knowledge Artifacts. Research Triangle
Park, NC: Patient‐Centered Clinical Decision Support Learning Network; 2018 Sep p. 21.

Thoughts:

An academic view of trust in creating tools to help people and clinicians make choices in clinical care

Links:

https://pccds-ln.org/sites/default/files/2018-09/TFWG%20White%20Paper_final.pdf

Curable Health Pain Management app

By

Curable Health Pain Management app

Resource Type: Tool

Thumbnail:

All three of Curable’s co-founders experienced chronic pain first-hand. The education and tools that we have packaged into the Curable program follow the same evidence-based strategies we used to recover from our own pain, including: degenerative disc disease, migraine, sciatica, RSI, knee pain, and more.

Thanks to modern neuroscience research and mindbody tools for chronic pain, we have our lives back. We believe that every pain sufferer deserves access to these tools, and are passionate about providing that.

Thoughts:

It costs, but it’s worth it

Links:

https://www.curablehealth.com/

Stanford researchers: The secret to overcoming the opioid crisis may lie partly in the mind

By

Stanford researchers: The secret to overcoming the opioid crisis may lie partly in the mind

Resource Type: Article

Thumbnail:

Most people – including most physicians — think of pain as a physical symptom, but science reveals that emotions also play a big role. In other words – psychology is integral to the pain experience, and it can make it better or worse.

When pain is treated solely with medications, only part of the problem has been addressed. Meanwhile, patients may receive too little of another kind of pain care, one that teaches them self-management techniques for treating pain. Our scientific research in the growing area of pain psychology shows that pain relief is more effective when you address the body and the mind.

Thoughts:

Accessible article about the mind-body relationship of pain. Works for me.

Links:

https://www.washingtonpost.com/news/inspired-life/wp/2017/09/12/stanford-researchers-the-secret-to-overcoming-the-opioid-crisis-may-be-all-in-the-mind/?noredirect=on&utm_term=.7693c0f58fb7

CDS Connect

By
cdslogo

CDS Connect

Resource Type: Website

Thumbnail:

The CDS Connect Repository follows AHRQ’s mission of focusing on evidence-based care, by identifying and codifying new evidence-based standards of care as CDS artifacts. These CDS artifacts address the domain of cholesterol management and are being extended in 2018 to support pain management and opioids. These artifacts will be piloted in a live clinical setting to refine and evaluate the effectiveness of the Repository and its processes around artifacts and their development. 30+ organizations and individuals participate and guide the development of the Repository through our external workgroup.

Thoughts:

Tackling the challenge of technology that supports the relationship of patients and clinicians as they make medical decisions

Links:

https://cds.ahrq.gov/cdsconnect

Patient-Centered Clinical Decision Support Learning Network

By
PCCDS

Patient-Centered Clinical Decision Support Learning Network

Resource Type: Organization

Thumbnail:

The Patient-Centered Clinical Decision Support Learning Network (PCCDS Learning Network) is bringing together stakeholders to address the opportunities and challenges around dissemination of evidence-based findings through patient-centered clinical decision support (PCCDS). Its central focus is providing a forum for stakeholders to address opportunities and challenges around PCCDS. Sponsored and funded by the Agency for Healthcare Quality and Research (AHRQ)

Thoughts:

A fine collaboration of CDS stakeholders – researchers, developers, implementers, clinicians, and patients with a resource center, patient perspective blog, and education materials.

Links:

https://pccds-ln.org/

https://twitter.com/pccdsln

The British Pain Society

By

The British Pain Society

Resource Type: Organization

Thumbnail:

The British Pain Society is the oldest and largest multidisciplinary professional organisation in the field of pain within the UK. Chronic pain is suffered by over a third of the population. It is commonly distressing and commonly highly disabling. It is devastating for individuals who suffer. Many cannot work and lose their jobs.

Treatment of pain is a fundamental human right, yet sadly there is an enormous gap between the care people require and what happens in practice. We also do not know enough about the cause and treatment of pain. Our alliance of professionals works collaboratively with patients and industry partners to advance the understanding and management of pain. We strive to reduce the suffering of people enduring daily pain.

Our multidisciplinary nature is pivotal in making The British Pain Society a uniquely relevant representative body on all matters relating to pain. The British Pain Society is a Chapter of the International Association for the Study of Pain

Thoughts:

Articles, special interest groups. It’s good to look outside the US.

Links:

https://www.britishpainsociety.org/about/

https://twitter.com/britishpainsoc?lang=en

https://www.facebook.com/thebritishpainsociety/

https://www.linkedin.com/company/the-british-pain-society/

Chronic Pain Self-Management Program

By

Chronic Pain Self-Management Program

Resource Type: Website

Thumbnail:

The Chronic Pain Self-Management Program (CPSMP) is a six week workshop for those living with chronic pain. Over the course of the sessions, participants will learn about:

*Techniques to deal with problems such as frustration, fatigue, isolation, and poor sleep
*Appropriate exercise for maintaining and improving strength, flexibility, and endurance
*Appropriate use of medications
*Communicating effectively with family, friends, and health professionals
*Nutrition
*Pacing activity and rest
*How to evaluate new treatments

Examples of chronic pain conditions are: chronic musculo-skeletal pain (such as neck, shoulder, back pain, etc.), fibromyalgia, whiplash injuries, chronic regional pain syndromes, repetitive strain injury, chronic pelvic pain, post-surgical pain that lasts beyond 6 months, neuropathic pain (often caused by trauma), or neuralgias (such as post-herpetic pain, and trigeminal neuralgia), and post-stroke or central pain. The CPSMP may also benefit those who have conditions such as persistent headache, Crohn’s disease, irritable bowel syndrome, diabetic neuropathy, or those who experience severe muscular pain due to conditions such as multiple sclerosis.

Thoughts:

Comprehensive, practical, vetted

Links:

http://www.eblcprograms.org/evidence-based/recommended-programs/chronic-pain-self-management