MHQP Resources for Empowering Patients

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MHQP Resources for Empowered Patients

Resource Type: Website

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Members of MHQP’s Consumer Health Council – experienced patient advocates and activists – have created this website to share their knowledge and insights with other patients. The site lists the tools, guidelines, and information you may need to manage your health, interact with clinicians and the healthcare system, and find answers to questions you may have. The articles and links included under each topic will help you become a more empowered and engaged patient/consumer of healthcare services.

Thoughts:

The Massachusetts Health Quality Partnership created a rich resource for patients and caregivers learning to lead as they manage their health journeys. Well done.

Links:

http://www.mhqp.org/for-patients/resources-for-empowered-patients/

http://www.facebook.com/pages/Watertown-MA/Massachusetts-Health-Quality-Partners-MHQP/244578103090

https://twitter.com/MHQP

https://www.linkedin.com/company/massachusetts-health-quality-partners

CR Alternative health treatments that work

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CR Alternative health treatments that work

Resource Type: Article

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Done anything alternative lately? If so, you have a lot of company. When we surveyed 45,601 Consumer Reports subscribers online, we found that three out of four were using some form of alternative therapy for their general health. More than 38 million adults make in excess of 300 million visits to acupuncturists, chiropractors, massage therapists, and other complementary and alternative practitioners each year in the United States.

Despite the hoopla over alternative treatments, when we asked respondents how well the therapies they used worked for 12 common health problems, results showed that they were usually deemed far less helpful than prescription medicine for most of the conditions.

Even widely used dietary supplements ranked far below over-the-counter medications in many cases. But hands-on treatments such as chiropractic and deep-tissue massage, as well as the mind-body practice of yoga dominated the lists of helpful alternative treatments for discomfort from conditions such as back pain, neck pain, and osteoarthritis.

Thoughts:

For 12 types of pain, only migraines had prescription meds as the most effective form of pain relief. Sad that I can’t find anything more recent. Makes me wonder about the investment in the science of alternatives to prescription pain relief. That said, definitely worth a read.

Links:

https://www.consumerreports.org/cro/2012/04/alternative-treatments/index.htm

The Pain Companion

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The Pain Companion

Resource Type: Website

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Are you suffering from chronic pain due to back injury, arthritis, fibromyalgia, migraines, or other chronic illness? I’ve lived with debilitating nerve pain from Thoracic Outlet Syndrome since 2007, so I understand the challenges all too well. I know how lonely and isolating it can be, and how misunderstood we often feel. On this website, I offer solace and support through practical insights, meditations, and emotional understanding through my blog posts, books, videos, and free resources. Feel free to connect and let me know what else you might like to see here. With warm best wishes, Sarah

Thoughts:

Comprehensive, well-written. Prolific. Some ads.

Links:

https://www.thepaincompanion.com/

https://www.linkedin.com/in/sarahshockley/

https://www.youtube.com/channel/UCJ9F7KcLrkZRWLVtseDnA3Q

The Pain Companion

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The Pain Companion

Resource Type: Website

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The Pain Companion came out of years of feeling very isolated and alone in my pain. I wanted to offer others in a similar situation the emotional, psychological, and pain management exercises and approaches that I eventually developed for myself.

As you probably already know, being injured or ill to the point of debilitation is an incredibly intense experience. Besides feeling a certain level of shock from the trauma of having your whole world turned upside down, there are a multitude of other emotional and psychological reactions that arise. These include loneliness, confusion, loss, frustration, depression, and hopelessness.

Thoughts:

Comprehensive, accessible, vetted

Links:

https://www.thepaincompanion.com/

https://www.facebook.com/thepaincompanion

https://www.youtube.com/channel/UCJ9F7KcLrkZRWLVtseDnA3Q

Chronic Pain Self-Management Program

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Chronic Pain Self-Management Program

Resource Type: Website

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The Chronic Pain Self-Management Program (CPSMP) is a six week workshop for those living with chronic pain. Over the course of the sessions, participants will learn about:

*Techniques to deal with problems such as frustration, fatigue, isolation, and poor sleep
*Appropriate exercise for maintaining and improving strength, flexibility, and endurance
*Appropriate use of medications
*Communicating effectively with family, friends, and health professionals
*Nutrition
*Pacing activity and rest
*How to evaluate new treatments

Examples of chronic pain conditions are: chronic musculo-skeletal pain (such as neck, shoulder, back pain, etc.), fibromyalgia, whiplash injuries, chronic regional pain syndromes, repetitive strain injury, chronic pelvic pain, post-surgical pain that lasts beyond 6 months, neuropathic pain (often caused by trauma), or neuralgias (such as post-herpetic pain, and trigeminal neuralgia), and post-stroke or central pain. The CPSMP may also benefit those who have conditions such as persistent headache, Crohn’s disease, irritable bowel syndrome, diabetic neuropathy, or those who experience severe muscular pain due to conditions such as multiple sclerosis.

Thoughts:

Comprehensive, practical, vetted

Links:

http://www.eblcprograms.org/evidence-based/recommended-programs/chronic-pain-self-management

Caregiving.com

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caregivingcom

Caregiving.com

Resource Type: Organization

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When you care for a family member or friend, we care for you. We’re a community of supportive individuals caring for a family member or friend. We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving. Create your free account to join our daily, weekly and monthly chats, to start your blog and to connect with others who understand.

Thoughts:

As a caregiver I find caregiving.com to be varied and deep. I especially like the 6 stages of caregiving (I May Help, I am Helping, My Role Has Ended, etc.) I was delighted to hear a podcast on caregiver sexuality. Denise Brown leads this fine effort.

Links:

https://www.caregiving.com/

https://twitter.com/caregiving

https://www.facebook.com/CaregivingSupport/

Alzheimer’s Reading Room

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Alzheimer's Reading Room

Resource Type: website

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‘The Alzheimer’s Reading Room is the number one source of high quality expert information for the entire Alzheimer’s and dementia communities. The goal of the Alzheimer’s Reading Room is to help everyone to better understand, cope, and communicate with a person living with dementia. The Alzheimer’s Reading Room Knowledge Base is searchable and contains more than 5,000 articles. These articles were written to answer questions, and provide solutions to the problems that caregivers face in Alzheimer’s and dementia care.

Thoughts:

Rob DeMarco’s constantly updated website provides an easily searchable repository of resources about Alzheimers and dementia. Articles are vetted and usable. I’ve never seen better. Wish I had moire time to browse.

Links:

https://www.alzheimersreadingroom.com/