MHQP Resources for Empowering Patients

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MHQP Resources for Empowered Patients

Resource Type: Website

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Members of MHQP’s Consumer Health Council – experienced patient advocates and activists – have created this website to share their knowledge and insights with other patients. The site lists the tools, guidelines, and information you may need to manage your health, interact with clinicians and the healthcare system, and find answers to questions you may have. The articles and links included under each topic will help you become a more empowered and engaged patient/consumer of healthcare services.

Thoughts:

The Massachusetts Health Quality Partnership created a rich resource for patients and caregivers learning to lead as they manage their health journeys. Well done.

Links:

http://www.mhqp.org/for-patients/resources-for-empowered-patients/

http://www.facebook.com/pages/Watertown-MA/Massachusetts-Health-Quality-Partners-MHQP/244578103090

https://twitter.com/MHQP

https://www.linkedin.com/company/massachusetts-health-quality-partners

Changeful

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Changeful

Resource Type: App

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The Transformative Power of Storytelling
Changeful is a mobile, video-based, behavior change-oriented platform designed to help alleviate the high medical costs incurred by family caregivers and professional care workers.

Thoughts:

Changeful provides payers, managed care and professionals caregiving organizations with participant insights and robust, anonymized data in a customizable dashboard.

Changeful engages caregivers with storytelling videos dealing with the problems they face every day. Tailored videos provide specific, actionable information. Alerts, live coaching, and an in-app social connection platform keep them motivated and involved.

Medical content is informed by the University of Southern California Keck School of Medicine.

Links:

Carium

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Carium

Resource Type: App

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Carium guides users to better health by getting to know them and their goals and leveraging behavioral medicine expertise to provide personalized guidance, support, and resources. Carium enables stronger connections with family and caregivers so they can be involved and stay informed as a patient’s proxy, and with doctors, fitness coaches, and others who contribute to a users’ health so they’re on the same page and easy to reach.

Thoughts:

Carium gains a comprehensive view of each user — through clinical EMR data, patient-generated data from wearables, the environment, and questions offered at contextually relevant moments — and provides personalized, timely notifications and actionable insights. Carium also facilitates asynchronous care delivery through voice, text, photos, and video.

Links:

https://www.carium.com/

The Difference Collaborative

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The Difference Collaborative

Resource Type: Presentation

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Understanding the experience of Nurse family caregivers from a mission-driven, multidisciplinary team that helps employers understand and improve the experience of employees who serve as family caregivers and their colleagues.

Thoughts:

Our esteemed colleagues Geri Lynn Baumblatt, George Karavattuveetil, Caol Zindler, Olga Masevich, Pete Wendel, and Alan Arriaga

Links:

https://www.health-hats.com/difference-collaborative-caregivers-and-the-workplace-v2/

Atlas CareMaps

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Atlas CareMaps

Resource Type: Tools

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Caregiving happens within an ecosystem. Caregivers and the ones they care for are situated in systems of support, connected to others through networks and webs of relationships, shared experiences, and interactions.

At Atlas of Caregiving, we believe that in order to improve systems, we must first understand them. In this spirit, we’ve made it our mission to create practical tools that build on our understanding of the experiences of family caregivers while helping families and professionals better understand, and ultimately improve, their own lives. The first of these tools is the CareMap.

On this site, we have provided in detail  all the instructions and support you will need to draw your own CareMap.
On the Draw Your Own CareMap page, you will find a video that walks you through using the CareMap tool. You will also see Key Features and Tips.
On the Hand-Drawn CareMaps page, we have provided you video and instructions on how to draw a hand-drawn CareMap.
All CareMap instructions are available in Spanish, too. For the hand-drawn instructions, click here.

Thoughts:

Nice

Links:

https://atlasofcaregiving.com/practical-solutions/atlas-caremaps/

The Pain Companion

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The Pain Companion

Resource Type: Website

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Are you suffering from chronic pain due to back injury, arthritis, fibromyalgia, migraines, or other chronic illness? I’ve lived with debilitating nerve pain from Thoracic Outlet Syndrome since 2007, so I understand the challenges all too well. I know how lonely and isolating it can be, and how misunderstood we often feel. On this website, I offer solace and support through practical insights, meditations, and emotional understanding through my blog posts, books, videos, and free resources. Feel free to connect and let me know what else you might like to see here. With warm best wishes, Sarah

Thoughts:

Comprehensive, well-written. Prolific. Some ads.

Links:

https://www.thepaincompanion.com/

https://www.linkedin.com/in/sarahshockley/

https://www.youtube.com/channel/UCJ9F7KcLrkZRWLVtseDnA3Q

Sons in the Workplace: The Role of Male Caregivers

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Sons in the Workplace: The Role of Male Caregivers

Resource Type: Article

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Consider these statistics, from The Eldercare Study: Everyday Realities and Wishes for Change, with data from the 2008 National Study of the Changing Workforce*:

On average, women spend 9.1 hours a week providing care (or an average of 6.4 hours providing in-person care and an average 2.7 hours providing indirect care).
Men spend an average total of 5.7 hours as caregivers (or an average 3.4 hours providing in-person care and an average 2.2 hours providing indirect care).
In 2008, men who were caregivers experienced more work-family conflict than did women who were caregivers. That year, 49 percent of men experienced “some” or “a lot” of conflict compared with 42 percent of women. It is unclear why men experienced more conflict, but perhaps the role of caregiving is newer to them than it is to women and thus the demands are experienced more intensely, the report noted.

Thoughts:

Perspective about employed caregivers

Links:

https://www.caregiverstress.com/stress-management/daughters-in-the-workplace/role-of-male-caregivers/

Men Are Family Caregivers, Too

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Men Are Family Caregivers, Too

Resource Type: Article

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About four in 10 family caregivers are men—sons, husbands, brothers, sons-in-law, or neighbors. We are nearly always ignored in discussions about caregiving, lost in the stereotype of the family caregiver as a 40-something daughter.

Thoughts:

Good intro article in Forbes

Links:

https://www.forbes.com/sites/howardgleckman/2017/04/12/men-are-family-caregivers-too/#2fc5a83571b3