MHQP Resources for Empowering Patients

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MHQP Resources for Empowered Patients

Resource Type: Website

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Members of MHQP’s Consumer Health Council – experienced patient advocates and activists – have created this website to share their knowledge and insights with other patients. The site lists the tools, guidelines, and information you may need to manage your health, interact with clinicians and the healthcare system, and find answers to questions you may have. The articles and links included under each topic will help you become a more empowered and engaged patient/consumer of healthcare services.

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The Massachusetts Health Quality Partnership created a rich resource for patients and caregivers learning to lead as they manage their health journeys. Well done.

Links:

http://www.mhqp.org/for-patients/resources-for-empowered-patients/

http://www.facebook.com/pages/Watertown-MA/Massachusetts-Health-Quality-Partners-MHQP/244578103090

https://twitter.com/MHQP

https://www.linkedin.com/company/massachusetts-health-quality-partners

Alcohol Abuse Among the Elderly

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Alcohol Abuse Among the Elderly

Resource Type: website

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Aging.com serves as a resource to help seniors and their families learn more about the specifics of planning for their later years. From aging in place to insurance to government programs, they’ve got what you need to know to continue enjoying a long, healthy life.

The National Council on Alcohol and Drug Dependence points out that up to 11 percent of elderly hospital admissions are because of drug- and alcohol-related issues.

Learn more from the National Council for Aging Care

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Comprehensive, up-to-date. More resources at this site.

Links:

https://www.aging.com/alcohol-abuse-amongst-the-elderly-a-complete-guide/

Changeful

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Changeful

Resource Type: App

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The Transformative Power of Storytelling
Changeful is a mobile, video-based, behavior change-oriented platform designed to help alleviate the high medical costs incurred by family caregivers and professional care workers.

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Changeful provides payers, managed care and professionals caregiving organizations with participant insights and robust, anonymized data in a customizable dashboard.

Changeful engages caregivers with storytelling videos dealing with the problems they face every day. Tailored videos provide specific, actionable information. Alerts, live coaching, and an in-app social connection platform keep them motivated and involved.

Medical content is informed by the University of Southern California Keck School of Medicine.

Links:

Healthy Humor

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Healthy Humor

Resource Type: Website

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We are an arts organization whose professional performers create moments of joy, wonder, laughter and comfort for hospitalized children and all others who are most in need.

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Entertainers in the hospital. Good stuff

Links:

https://www.healthyhumorinc.org/

https://twitter.com/healthyhumorinc

https://www.linkedin.com/company/healthy-humor-inc./

https://www.facebook.com/healthyhumorinc/

https://www.instagram.com/healthyhumorinc/

Engaging Family Caregivers as Partners in Care Transitions

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Engaging Family Caregivers as Partners in Care Transitions

Resource Type: Article

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A United Hospital Fund Special Report by Carol Levine and others. The goal: to take on the challenge of examining how chronically ill patients are transitioned
from one care setting to the next, and how that transition could be improved by systematically involving family caregivers and arming them with better information, training, and support. Specific strategies to achieve that goal were:
• Inclusion of the family caregiver in medication reconciliation;
• Identification of post-discharge patient needs and discussion of patient discharge options with the
family caregiver;
• Discharge preparedness (training, expectations of the day of discharge);
• A well-orchestrated day of discharge;
• Closing the loop, including post-discharge communication with the family caregiver and the
receiving agency

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A book published in 2013. Pretty good

Links:

https://uhfnyc.org/publications/880905

WellBrain

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WellBrain

Resource Type:

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We are a physician created and managed company that cares about patient outcomes.
Our team has incomparable expertise and experience in the industry. Our doctors are Harvard, Stanford, and Mayo Clinic trained, all who completed accredited fellowships and are board certified in Pain Medicine. We have worked in clinics around the world trying to make people better. Over 50 years of collective experience has taught us what can make real patients better.

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Recommended by Beth Barnett

Links:

http://wellbrain.io/

Caregiver Statistics: Demographics

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Caregiver Statistics: Demographics

Resource Type: Article

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65% of care recipients are female, with an average age of 69.4. The younger the care recipient, the more likely the recipient is to be male. 45% of recipients aged 18-45 are male, while 33% of recipients aged 50 or higher are male. [National Alliance for Caregiving and AARP. (2015). Caregiving in the U.S.]
Upwards of 75% of all caregivers are female, and may spend as much as 50% more time providing care than males. [Institute on Aging. (2016). Read How IOA Views Aging in America.]
Male caregivers are less likely to provide personal care, but 24% helped a loved one get dressed compared to 28% of female caregivers. 16% of male caregivers help with bathing versus 30% of females. 40% of male caregivers use paid assistance for a loved one’s personal care. About 14.5 million caregivers are males out of the 43.4% who care for an older family member. [National Alliance for Caregiving and AARP. (2009). Caregiving in the U.S.]

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Rich source of statistics

Links:

https://www.caregiver.org/caregiver-statistics-demographics

Sons in the Workplace: The Role of Male Caregivers

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Sons in the Workplace: The Role of Male Caregivers

Resource Type: Article

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Consider these statistics, from The Eldercare Study: Everyday Realities and Wishes for Change, with data from the 2008 National Study of the Changing Workforce*:

On average, women spend 9.1 hours a week providing care (or an average of 6.4 hours providing in-person care and an average 2.7 hours providing indirect care).
Men spend an average total of 5.7 hours as caregivers (or an average 3.4 hours providing in-person care and an average 2.2 hours providing indirect care).
In 2008, men who were caregivers experienced more work-family conflict than did women who were caregivers. That year, 49 percent of men experienced “some” or “a lot” of conflict compared with 42 percent of women. It is unclear why men experienced more conflict, but perhaps the role of caregiving is newer to them than it is to women and thus the demands are experienced more intensely, the report noted.

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Perspective about employed caregivers

Links:

https://www.caregiverstress.com/stress-management/daughters-in-the-workplace/role-of-male-caregivers/