MHQP Resources for Empowering Patients

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MHQP Resources for Empowered Patients

Resource Type: Website

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Members of MHQP’s Consumer Health Council – experienced patient advocates and activists – have created this website to share their knowledge and insights with other patients. The site lists the tools, guidelines, and information you may need to manage your health, interact with clinicians and the healthcare system, and find answers to questions you may have. The articles and links included under each topic will help you become a more empowered and engaged patient/consumer of healthcare services.

Thoughts:

The Massachusetts Health Quality Partnership created a rich resource for patients and caregivers learning to lead as they manage their health journeys. Well done.

Links:

http://www.mhqp.org/for-patients/resources-for-empowered-patients/

http://www.facebook.com/pages/Watertown-MA/Massachusetts-Health-Quality-Partners-MHQP/244578103090

https://twitter.com/MHQP

https://www.linkedin.com/company/massachusetts-health-quality-partners

Alcohol Abuse Among the Elderly

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Alcohol Abuse Among the Elderly

Resource Type: website

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Aging.com serves as a resource to help seniors and their families learn more about the specifics of planning for their later years. From aging in place to insurance to government programs, they’ve got what you need to know to continue enjoying a long, healthy life.

The National Council on Alcohol and Drug Dependence points out that up to 11 percent of elderly hospital admissions are because of drug- and alcohol-related issues.

Learn more from the National Council for Aging Care

Thoughts:

Comprehensive, up-to-date. More resources at this site.

Links:

https://www.aging.com/alcohol-abuse-amongst-the-elderly-a-complete-guide/

Changeful

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Changeful

Resource Type: App

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The Transformative Power of Storytelling
Changeful is a mobile, video-based, behavior change-oriented platform designed to help alleviate the high medical costs incurred by family caregivers and professional care workers.

Thoughts:

Changeful provides payers, managed care and professionals caregiving organizations with participant insights and robust, anonymized data in a customizable dashboard.

Changeful engages caregivers with storytelling videos dealing with the problems they face every day. Tailored videos provide specific, actionable information. Alerts, live coaching, and an in-app social connection platform keep them motivated and involved.

Medical content is informed by the University of Southern California Keck School of Medicine.

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Atlas CareMaps

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Atlas CareMaps

Resource Type: Tools

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Caregiving happens within an ecosystem. Caregivers and the ones they care for are situated in systems of support, connected to others through networks and webs of relationships, shared experiences, and interactions.

At Atlas of Caregiving, we believe that in order to improve systems, we must first understand them. In this spirit, we’ve made it our mission to create practical tools that build on our understanding of the experiences of family caregivers while helping families and professionals better understand, and ultimately improve, their own lives. The first of these tools is the CareMap.

On this site, we have provided in detail  all the instructions and support you will need to draw your own CareMap.
On the Draw Your Own CareMap page, you will find a video that walks you through using the CareMap tool. You will also see Key Features and Tips.
On the Hand-Drawn CareMaps page, we have provided you video and instructions on how to draw a hand-drawn CareMap.
All CareMap instructions are available in Spanish, too. For the hand-drawn instructions, click here.

Thoughts:

Nice

Links:

https://atlasofcaregiving.com/practical-solutions/atlas-caremaps/

Recommendations for Building and Maintaining Trust in Clinical Decision Support Knowledge Artifacts

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PCCDS

Recommendations for Building and Maintaining Trust in Clinical Decision Support Knowledge Artifacts

Resource Type: Article

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The Patient-Centered CDS Learning Network’s Trust Framework Working Group (TFWG) identified core attributes for trust (“trust attributes”): competency, compliance, consistency, discoverability, evidence-based, feedback and updating, organizational capacity, and patient-centered.

Middleton B, Platt JE, Richardson JE, Blumenfeld BH. Recommendations for Building and
Maintaining Trust in Clinical Decision Support Knowledge Artifacts. Research Triangle
Park, NC: Patient‐Centered Clinical Decision Support Learning Network; 2018 Sep p. 21.

Thoughts:

An academic view of trust in creating tools to help people and clinicians make choices in clinical care

Links:

https://pccds-ln.org/sites/default/files/2018-09/TFWG%20White%20Paper_final.pdf

CHRONIC PAIN: A CYCLE OF STRESS AND PAIN

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CHRONIC PAIN: A CYCLE OF STRESS AND PAIN

Resource Type: Graphic

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Everyday stressors have more of an impact on the body than most of us realize. Once stressors are identified, the brain begins to put the body into a state of fight or flight, causing real, physical effects in the body.

Over time, the brain and central nervous system learn to continue to put the body into a painful state, which repeats the pain cycle.

The Curable team utilized their knowledge of modern neuroscience to visually depict the stress-related chronic pain cycle. Please note that modern neuroscientists are still working to understand all the details of this cycle, but we believe this visual will help you grasp the concept on a deeper level.

Thoughts:

Nice graphic from Curable

Links:

https://storage.googleapis.com/curable-www/images/web/curable-poster-chronic-pain_a-cycle-of-stress-and-pain.pdf

https://www.youtube.com/channel/UCKm2fyU9vvsl__2CRAArv1w

https://www.instagram.com/curablehealth/

https://twitter.com/curablehealth?lang=en

Words Matter When Talking About Pain With Your Doctor

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Words Matter When Talking About Pain With Your Doctor

Resource Type: Article

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If you’re in the hospital or a doctor’s office with a painful problem, you’ll likely be asked to rate your pain on a scale of 0 to 10 – with 0 meaning no pain at all and 10 indicating the worst pain you can imagine. But many doctors and nurses say this rating system isn’t working and they’re trying a new approach.

The numeric pain scale may just be too simplistic, says Dr. John Markman, director of the Translational Pain Research Program at the University of Rochester School of Medicine and Dentistry. It can lead doctors to “treat by numbers,” he says and as a result, patients may not be getting the most effective treatment for their pain.

Thoughts:

Hate that pain scale vital sign. Meaningless

Links:

https://www.npr.org/sections/health-shots/2018/07/23/626202281/words-matter-when-talking-about-pain-with-your-doctor

Engulfed in Opioid Deaths, Ohio Turns to Science

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Engulfed in Opioid Deaths, Ohio Turns to Science

Resource Type: Article

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Last year Ohio poured nearly $1 billion into fighting the crisis through prevention, treatment and law enforcement. But the state keeps surpassing its own grim statistics. Exasperated, local authorities have begun confronting the disaster from another angle—technology. In May the state signed off on Gov. John Kasich’s request to invest $20 million in accelerating high-tech scientific measures to address the situation. Universities, hospitals, and medical device manufacturers are now vying for grant money with proposals that include implantable therapeutic meshes and systems that deliver electric nerve jolts.

Thoughts:

Interesting technology

Links:

https://www.scientificamerican.com/article/engulfed-in-opioid-deaths-ohio-turns-to-science/