Skip to main content
Danny van Leeuwen - Learn with people on the journey toward best health
Hit enter to search or ESC to close
Close Search
Danny van Leeuwen    Health Hats
search
Menu
  • Podcast
  • Topics
    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
  • Support
  • Explore
  • Contact
  • search
Nov 23 2025
Love0

A Third on the Shelf: Rethinking Power in Community Research

By Danny van Leeuwen Advocate, ePatient, Podcasts, Researcher, Video No Comments

Podcast: Play in new window | Download () | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

Kirk & Lacy on shifting research funding away from federal grants: what happens to community partnerships when the money—and the rules—change?

Read More

Nov 02 2025
Love0

Give Me My Damn Data. Then What? Managing Permissions.

By Danny van Leeuwen Advocate, Consumer, ePatient, Informaticist, Podcasts, Researcher, Video

Podcast: Play in new window | Download (Duration: 43:49 — 35.1MB) | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

Your health data belongs to you—but how can you share it safely? Fabienne Bourgeois, MD, exposes the complex truth about privacy, permissions, and data control.

Read More

Oct 06 2025
Love0

Catch-22.0: AI Creates Problems It Solves

By Danny van Leeuwen Advocate, Consumer, Informaticist, Podcasts, Researcher, Video

Podcast: Play in new window | Download (Duration: 23:04 — 18.5MB) | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

Healthcare AI isn’t a tech problem—it’s a mirror reflecting how our health system already fails. Uncomfortable truths from Datapalooza 2025.

Read More

Sep 07 2025
Love0

Letter: Trust Me, I’m Skeptical

By Danny van Leeuwen Advocate, ePatient, Leader, Podcasts, Video

Podcast: Play in new window | Download (Duration: 4:07 — 5.7MB) | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

Letters beat emails for trustworthiness. A gullible skeptic reflects on navigating trust in a 50-year marriage, and the energy cost of distrust.

Read More

Aug 10 2025
Love0

Listen First, Lead Together: Advocacy and Power Dynamics

By Danny van Leeuwen Advocate, Consumer, Leader, Podcasts, Video

Podcast: Play in new window | Download (Duration: 46:29 — 37.2MB) | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

Ronda Alexander on strategies to build inclusive health coalitions, manage power dynamics, center marginalized voices, & design sustainable governance.

Read More

Jul 19 2025
Love0

Never leave your shit on someone else’s farm!

By Danny van Leeuwen Advocate, Leader, Podcasts, Video

Podcast: Play in new window | Download (Duration: 33:37 — 26.9MB) | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

Exploring bird flu prevention with farm owner Shannon Hayes. Discover boot washing, flock protection with coyotes, and best practices in biosecurity.

Read More

Jun 21 2025
Love0

First We Listen, Then We Act. Informatics in Decision-Making

By Danny van Leeuwen Advocate, Clinician, Informaticist, Leader, Podcasts, Video

Podcast: Play in new window | Download () | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

MS patient turned healthcare disruptor shares why your biggest “problem users” are actually your most valuable system improvers.

Read More

May 21 2025
Love0

Pod People, Participatory Governance during COVID

By Danny van Leeuwen Caregiver, Family man, Podcasts, Video

Podcast: Play in new window | Download (Duration: 44:27 — 35.6MB) | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

These families created a pandemic pod with clear rules & shared childcare. While adults navigated anxiety, their kids called it “the best time of their lives.”

Read More

Apr 24 2025
Love0

Afro-Cuban Jazz and Helping Hands: Cuba’s Accessible Beat

By Danny van Leeuwen Musician, Podcasts, Traveler

Podcast: Play in new window | Download (Duration: 34:22 — 27.5MB) | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

Who needs Spanish when you’ve got a saxophone? A music-lover proves that disability access is just another improvisation in Havana’s jazz scene.

Read More

Mar 09 2025
Love0

Healthcare AI for Humans: Governance, Research, and Rights

By Danny van Leeuwen Advocate, ePatient, Informaticist, Podcasts, Researcher

Podcast: Play in new window | Download (Duration: 24:57 — 22.8MB) | Embed

Subscribe: Apple Podcasts | Spotify | Email | RSS | More

Data scientist Emily Hadley on navigating AI in healthcare, offering practical advice for maintaining patient agency amid algorithmic decision-making.

Read More

Get New Posts via Email

Your support is appreciated

Donate

Subscribe to my podcast:

Apple PodcastsAndroidby EmailRSSMore Subscribe Options

Subscribe to my YouTube channel:

Categories

  • Advocate
  • Caregiver
  • Clinician
  • Consumer
  • ePatient
  • Family man
  • Informaticist
  • Leader
  • Musician
  • Podcasts
  • Researcher
  • Traveler
  • Uncategorized
  • Video
  • Written Only

Search This Site

Tags:

Pain Exercise EHR learning Care Partner trust Holocaust decision-making technology inclusion community action pain management parenting person-first care planning community health literacy Adaptive Travel improv emerging adults relationships health partners goals diversity interoperability MS advocacy entrepreneur Health equity Behavioral Health Data Best health end-of-life patient engagement leadership superpower transitions PHR wheelchair innovation ePatient partnerships safe living threshold multiple sclerosis lived experience chronic illness Rest research PCORI Medical Record Young Adult palliative care saxophone questions cancer primary care magic lever measurement Patient Expert podcast Covid-19 health team resilience coaching habits stress management Social Determinants of Health storytelling CEO of Your Health podcasting adherence Society for Participatory Medicine retirement implementation science disability empowerment mental illness Impact Learning choices music Community Health continual learning Failure engagement community research consent young adults clinical decision support grief Camino de Santiago Mentoring caregiving self-care travelogue People at the Center of Care access mindfulness evidence Recovery

Health Hats

  • Podcast
  • Topics
    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
  • Support
  • Explore
  • Contact

Follow Me:

Receive Health Hats Posts by Email:

© 2025 Danny van Leeuwen Health Hats.

Close Menu
Danny van Leeuwen - Learn with people on the journey toward best health
  • Podcast
  • Topics
    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
  • Support
  • Explore
  • Contact