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Nov 23 2025
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A Third on the Shelf: Rethinking Power in Community Research

By Danny van Leeuwen Advocate, ePatient, Podcasts, Researcher, Video

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Kirk & Lacy on shifting research funding away from federal grants: what happens to community partnerships when the money—and the rules—change?

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Nov 02 2025
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Give Me My Damn Data. Then What? Managing Permissions.

By Danny van Leeuwen Advocate, Consumer, ePatient, Informaticist, Podcasts, Researcher, Video

Podcast: Play in new window | Download (Duration: 43:49 — 35.1MB) | Embed

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Your health data belongs to you—but how can you share it safely? Fabienne Bourgeois, MD, exposes the complex truth about privacy, permissions, and data control.

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Oct 06 2025
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Catch-22.0: AI Creates Problems It Solves

By Danny van Leeuwen Advocate, Consumer, Informaticist, Podcasts, Researcher, Video

Podcast: Play in new window | Download (Duration: 23:04 — 18.5MB) | Embed

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Healthcare AI isn’t a tech problem—it’s a mirror reflecting how our health system already fails. Uncomfortable truths from Datapalooza 2025.

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Sep 07 2025
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Letter: Trust Me, I’m Skeptical

By Danny van Leeuwen Advocate, ePatient, Leader, Podcasts, Video

Podcast: Play in new window | Download (Duration: 4:07 — 5.7MB) | Embed

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Letters beat emails for trustworthiness. A gullible skeptic reflects on navigating trust in a 50-year marriage, and the energy cost of distrust.

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Aug 10 2025
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Listen First, Lead Together: Advocacy and Power Dynamics

By Danny van Leeuwen Advocate, Consumer, Leader, Podcasts, Video

Podcast: Play in new window | Download (Duration: 46:29 — 37.2MB) | Embed

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Ronda Alexander on strategies to build inclusive health coalitions, manage power dynamics, center marginalized voices, & design sustainable governance.

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Jul 19 2025
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Never leave your shit on someone else’s farm!

By Danny van Leeuwen Advocate, Leader, Podcasts, Video

Podcast: Play in new window | Download (Duration: 33:37 — 26.9MB) | Embed

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Exploring bird flu prevention with farm owner Shannon Hayes. Discover boot washing, flock protection with coyotes, and best practices in biosecurity.

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Jun 21 2025
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First We Listen, Then We Act. Informatics in Decision-Making

By Danny van Leeuwen Advocate, Clinician, Informaticist, Leader, Podcasts, Video

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MS patient turned healthcare disruptor shares why your biggest “problem users” are actually your most valuable system improvers.

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May 21 2025
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Pod People, Participatory Governance during COVID

By Danny van Leeuwen Caregiver, Family man, Podcasts, Video

Podcast: Play in new window | Download (Duration: 44:27 — 35.6MB) | Embed

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These families created a pandemic pod with clear rules & shared childcare. While adults navigated anxiety, their kids called it “the best time of their lives.”

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Apr 24 2025
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Afro-Cuban Jazz and Helping Hands: Cuba’s Accessible Beat

By Danny van Leeuwen Musician, Podcasts, Traveler

Podcast: Play in new window | Download (Duration: 34:22 — 27.5MB) | Embed

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Who needs Spanish when you’ve got a saxophone? A music-lover proves that disability access is just another improvisation in Havana’s jazz scene.

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Mar 09 2025
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Healthcare AI for Humans: Governance, Research, and Rights

By Danny van Leeuwen Advocate, ePatient, Informaticist, Podcasts, Researcher

Podcast: Play in new window | Download (Duration: 24:57 — 22.8MB) | Embed

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Data scientist Emily Hadley on navigating AI in healthcare, offering practical advice for maintaining patient agency amid algorithmic decision-making.

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Danny van Leeuwen - Learn with people on the journey toward best health
  • Podcast
  • Topics
    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
  • Support
  • Explore
  • Contact