Plan Care

Understand patients’ health goals and align with your medical goals.

Understand patient preferences and culture.

Document who on the patient’s team does what, when?

Alzheimer's Reading Room (website)

Description: The Alzheimer’s Reading Room is the number one source of high quality expert information for the entire Alzheimer’s and dementia communities. The goal of the Alzheimer’s Reading Room is to help everyone to better understand, cope, and communicate with a person living with dementia. The Alzheimer’s Reading Room Knowledge Base is searchable and contains more than 5,000 articles.

Danny’s Thoughts: Rob DeMarco’s constantly updated website provides an easily searchable repository of resources about Alzheimers and dementia. Articles are vetted and usable. I’ve never seen better. Wish I had more time to browse.

http://www.alzheimersreadingroom.com/

MS Society Canada (website, blog)

Description: ”Welcome to the community of someonelikeme.ca! We invite you to meet people just like you, this includes those with MS or facing the prospect of an MS diagnosis, and those who have a loved one with MS or are supporting an individual who is living with MS. This is a place: where you can contribute to lively discussions and authentic conversations about the daily challenges that MS can present; where you can get information to help yourself and help your friends. Our goal is to be open and accessible, and to discuss issues and feelings freely, safely, and comfortably.

Danny’s Thoughts: For youth with MS. I’m 65 and I feel at home here. Physical, emotional, everyday life, newly diagnosed, videos, blogs. Refreshing.

https://someonelikeme.ca/

Do I Look Sick (blog)

Description: ”Nearly 1 in every 2 Americans suffer from an invisible, chronic condition. On this blog, you’ll find stories from real people dealing with real chronic conditions. If you have an invisible illness, know that you’re not alone. If you don’t, know that one (or more) of your friends probably does.The more we can educate people, the easier it will be to live with invisible illness. My name is Rachel Meeks. I have endometriosis, an incurable chronic pain condition, IBS, a digestive illness, and PCOS, which causes irregular periods and infertility. After hiding my illness for a long time, I began to get upset at the mistreatment of people with illness. I realized the only way I could help was to speak out, make some noise, wear my heart on my sleeve, and confess that I am not well. This blog is all that noise!’

Danny’s Thoughts: The most common thing I hear from people is, “You look great! You don’t look sick.” I 60% love it and 40% hate it. Rachel Meeks is practical, easy to read, humorous in a self-deprecating sort of way, and she almost always gets some sort of rise out of me in a positive way. She lingers. Thoughts, observations, book reviews, and rants in no particular order. She took a break for a while and I missed her. Can be a little hard to read with small font on black background.

https://doilooksick.com/

@doilooksick

FB: Do-I-Look-Sick

Caregiving.com (blog, website, chat)

Description: ”When you care for a family member or friend, we care for you. We’re a community of supportive individuals caring for a family member or friend. We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving. Create your free account to join our daily, weekly and monthly chats, to start your blog and to connect with others who understand.’ Blogs for many caregiving categories, online courses, podcasts, and 6 stages of caregiving.

Danny’s Thoughts: As a caregiver I find caregiving.com to be varied and deep. I especially like the 6 stages of caregiving (I May Help, I am Helping, My Role Has Ended, etc.) I was delighted to hear a podcast on caregiver sexuality. Denise Brown leads this fine effort.

https://www.caregiving.com/

@caregiving

FB: CaregivingSupport

Mad in America (website)

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