Allie, Becky, and Jenni have gone through the gut-wrenching experience of trying to manage the physical and cognitive deterioration of their parents. How do you partner from a distance with reluctant parents? Do you intervene? How do you intervene? How much do you intervene? What’s best for them? How do we maintain our boundaries as we help parents we love so much and make us so crazy?
Walking through the who, what, where, and why of clinical decisions and Clinical Decision Support? Why we should care and what can we do? I’m also going to talk about uncertainty, the three T’s (Time, Trust and Talk) and the two C’s (Control and Connection).
Michael Mittelman received three kidneys via transplant, his current kidney from a living donor, his mother. He identifies as an advocate for organ donation, specifically, living organ donors. He also works across disease areas to help companies understand and involve patients. He cares deeply about access and equity in healthcare. For this episode, I’m going to test calling our work as advocates, activists, and partners, an Independent Community Benefit Practice.
Patient expert, co-investigator, patient partner, subject matter expert, patient advocate, patient/caregiver activist. Many labels. Whatever you call us, invite those of us with different and unique experience, skills, and circumstances to sit at decision-making tables. Then treat us as equals and respect us. Then do something with what we offer.
Wow, four strokes by age 39. Quite a record for a sportswoman. A story about trust. First, no benefit of the doubt by the first diagnosing person thinking that Lisa was a drugged-out college student. Then Lisa’s trust in herself as a patient expert. Experience and engagement reinforce each other and builds confidence. No mystery that I appreciate I’m “good at naps.” So far, I don’t know how else to introduce young people to choices about health, wellness, or illness other than including them when someone in their lives is actively making such choices. Lead by example. Also, no mystery that I appreciate Lisa’s emphasis on telling her story. I’m delighted to be a channel.
Feeling my oats as CEO of my Health! I lead and manage a company dedicated to my health. Let’s pause and gather this frame into our brains and sinew with the help of the past few interviewees. Then we’ll explore more in the next few episodes. Come aboard and listen or read.
I’m CEO of my health and I’m tired. I crave inspiration. I need a recharge. Several weeks ago, I recorded a conversation with Amy Faeskorn. I appreciate the Improv lesson Amy teaches here about the ‘yes and’ approach to best health, sprinkled with lessons from homeschooling. I feel better already.
Can I learn about learning to become a better CEO of my health from a high school teacher? Absolutely, Matt Neil and I explore enrollment in learning, health in school, learning with peers, planting seeds, and dignity and respect in this free-wheeling conversation.
Before her auto accident that caused chronic pain and subsequent surgeries, Barby Ingle was no stranger to pain. After her accident, Barby felt overtreated, untreated, and mistreated. She took control of her medical management and replaced drug pain solutions with physical pain solutions. She repurposed her media savvy to heal herself and engage others.