Our Best Selves

Third Annual National Caregiving Conference, Chicago, Nov 8-11, 2018

Resources

Let us know if you have articles, tools, organizations to add

Caregiving

Caregiving.com

caregivingcom

Caregiving.com

Resource Type: Organization

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When you care for a family member or friend, we care for you. We’re a community of supportive individuals caring for a family member or friend. We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving. Create your free account to join our daily, weekly and monthly chats, to start your blog and to connect with others who understand.

Thoughts:

As a caregiver I find caregiving.com to be varied and deep. I especially like the 6 stages of caregiving (I May Help, I am Helping, My Role Has Ended, etc.) I was delighted to hear a podcast on caregiver sexuality. Denise Brown leads this fine effort.

Links:

https://www.caregiving.com/

https://twitter.com/caregiving

https://www.facebook.com/CaregivingSupport/

Experience of People at the Center of Care

Logo for Danny van Leeuwen Health Hats

Health Hats: What’s the Problem with the Experience of People at the Center of Care?

Resource Type: Blog post

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Wearing my many hats: e-patient, caregiver, nurse, informaticist, and leader, I am blessed with mostly positive experiences on my health journey.  At worst, my experiences are seriously annoying. This week, attending a benefit for MITSS (Medically Induced Trauma Support Services), I’m reminded that not everyone is so lucky. As I scan the industry several problems with the experience of the people at the center of care (patients, caregivers, clinicians, direct care and support staff) jump out

Thoughts:

Links:

https://www.health-hats.com/whats-the-problem-with-the-experience-of-people-at-the-center-of-care/

https://www.linkedin.com/in/healthhatsdannyvl/

https://twitter.com/HealthHats

https://www.youtube.com/user/dvanleeu

https://www.health-hats.com/

Society for Participatory Medicine

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Thoughts:

Links:

Atlas CareMaps

Atlas CareMaps

Resource Type: Tools

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Caregiving happens within an ecosystem. Caregivers and the ones they care for are situated in systems of support, connected to others through networks and webs of relationships, shared experiences, and interactions.

At Atlas of Caregiving, we believe that in order to improve systems, we must first understand them. In this spirit, we’ve made it our mission to create practical tools that build on our understanding of the experiences of family caregivers while helping families and professionals better understand, and ultimately improve, their own lives. The first of these tools is the CareMap.

On this site, we have provided in detail  all the instructions and support you will need to draw your own CareMap.
On the Draw Your Own CareMap page, you will find a video that walks you through using the CareMap tool. You will also see Key Features and Tips.
On the Hand-Drawn CareMaps page, we have provided you video and instructions on how to draw a hand-drawn CareMap.
All CareMap instructions are available in Spanish, too. For the hand-drawn instructions, click here.

Thoughts:

Nice

Links:

https://atlasofcaregiving.com/practical-solutions/atlas-caremaps/

Engaging Family Caregivers as Partners in Care Transitions

Engaging Family Caregivers as Partners in Care Transitions

Resource Type: Article

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A United Hospital Fund Special Report by Carol Levine and others. The goal: to take on the challenge of examining how chronically ill patients are transitioned
from one care setting to the next, and how that transition could be improved by systematically involving family caregivers and arming them with better information, training, and support. Specific strategies to achieve that goal were:
• Inclusion of the family caregiver in medication reconciliation;
• Identification of post-discharge patient needs and discussion of patient discharge options with the
family caregiver;
• Discharge preparedness (training, expectations of the day of discharge);
• A well-orchestrated day of discharge;
• Closing the loop, including post-discharge communication with the family caregiver and the
receiving agency

Thoughts:

A book published in 2013. Pretty good

Links:

https://uhfnyc.org/publications/880905

Men in Caregiving

AARP videos: Male Caregivers

AARP videos: Male Caregivers

Resource Type: Videos

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In many respects, male caregivers resemble their female counterparts. Yet, men, be more uncomfortable with hands-on personal care, although such intimate interactions can be difficult for caregivers of any gender. They say they are less likely to open up to others when they feel stressed or overwhelmed by caregiving responsibilities.

Thoughts:

Set of six short videos about men as caregivers

Links:

http://videos.aarp.org/search?q=male%20caregiving

Caregiver Statistics: Demographics

Caregiver Statistics: Demographics

Resource Type: Article

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65% of care recipients are female, with an average age of 69.4. The younger the care recipient, the more likely the recipient is to be male. 45% of recipients aged 18-45 are male, while 33% of recipients aged 50 or higher are male. [National Alliance for Caregiving and AARP. (2015). Caregiving in the U.S.]
Upwards of 75% of all caregivers are female, and may spend as much as 50% more time providing care than males. [Institute on Aging. (2016). Read How IOA Views Aging in America.]
Male caregivers are less likely to provide personal care, but 24% helped a loved one get dressed compared to 28% of female caregivers. 16% of male caregivers help with bathing versus 30% of females. 40% of male caregivers use paid assistance for a loved one’s personal care. About 14.5 million caregivers are males out of the 43.4% who care for an older family member. [National Alliance for Caregiving and AARP. (2009). Caregiving in the U.S.]

Thoughts:

Rich source of statistics

Links:

https://www.caregiver.org/caregiver-statistics-demographics

Men Are Family Caregivers, Too

Men Are Family Caregivers, Too

Resource Type: Article

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About four in 10 family caregivers are men—sons, husbands, brothers, sons-in-law, or neighbors. We are nearly always ignored in discussions about caregiving, lost in the stereotype of the family caregiver as a 40-something daughter.

Thoughts:

Good intro article in Forbes

Links:

https://www.forbes.com/sites/howardgleckman/2017/04/12/men-are-family-caregivers-too/#2fc5a83571b3

Sons in the Workplace: The Role of Male Caregivers

Sons in the Workplace: The Role of Male Caregivers

Resource Type: Article

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Consider these statistics, from The Eldercare Study: Everyday Realities and Wishes for Change, with data from the 2008 National Study of the Changing Workforce*:

On average, women spend 9.1 hours a week providing care (or an average of 6.4 hours providing in-person care and an average 2.7 hours providing indirect care).
Men spend an average total of 5.7 hours as caregivers (or an average 3.4 hours providing in-person care and an average 2.2 hours providing indirect care).
In 2008, men who were caregivers experienced more work-family conflict than did women who were caregivers. That year, 49 percent of men experienced “some” or “a lot” of conflict compared with 42 percent of women. It is unclear why men experienced more conflict, but perhaps the role of caregiving is newer to them than it is to women and thus the demands are experienced more intensely, the report noted.

Thoughts:

Perspective about employed caregivers

Links:

https://www.caregiverstress.com/stress-management/daughters-in-the-workplace/role-of-male-caregivers/

Caregiving & Employment

Session Materials

Click to open panel on slider. To Print a PowerPoint slide deck, click on open with PowerPoint. When open click on banner to edit, then print as you usually would.  Or e-mail me and I’ll send you the file.

 

Reading the Room and Yourself

Lessons from the Clowns When you Go to the Doctor's Office

 

The Difference Collaborative

Supporting Family Caregivers in the Workplace

 

Caregiving: The Male Perspective

Slides

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Panel Members

Danny van Leeuwen

Owner, Health Hats

As an action catalyst, I empower people traveling together toward best health (people as patients, caregivers, parents, clinicians, direct care staff, communities, and the people that support them). I wear many hats in healthcare:

-Patient with Multiple Sclerosis
-Care partner for several family members’ end-of-life journeys
-Nurse for 40+ years
-Informaticist
-QI leader
-Husband, Father, Opa, Musician

I specialize in patient/ caregiver/ clinician/ community relationships and the intersection between technology and the health journey.

Join the Conversation

Scroll to the bottom of the page to ask the panelists questions or enlighten us. The more the merrier!

Reading the Room

Health Hats

Blog: Health Hats

Highlights: Danny van Leeuwen – Empowering people as they travel together toward best health. Use search terms: Caregiving, caregiver to find relevant posts

Find the blog here

Healthy Humor

Healthy Humor

Resource Type: Website

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We are an arts organization whose professional performers create moments of joy, wonder, laughter and comfort for hospitalized children and all others who are most in need.

Thoughts:

Entertainers in the hospital. Good stuff

Links:

https://www.healthyhumorinc.org/

https://twitter.com/healthyhumorinc

https://www.linkedin.com/company/healthy-humor-inc./

https://www.facebook.com/healthyhumorinc/

https://www.instagram.com/healthyhumorinc/

Proponents of Play

Proponents of Play

Resource Type: Website

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WORK AT PLAY. PLAY AT WORK.
PLAY IS THE MEANS BY WHICH ALL PEOPLE LEARN & DEVELOP.

Thoughts:

Bringing humor into the workplace

Links:

http://www.proponentofplay.com/

https://twitter.com/ProponentOfPlay

https://www.facebook.com/ProponentOfPlay?ref=hl

Talk to Me:

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