People at the center of care (individuals, caregivers, family networks, and healthcare professionals) crave knowledge to make sense of and make decisions about their health journey. We need information we can understand that’s relevant to us and our families. Unfortunately, it can seem dry like a desert or like drinking water from a firehose, often dirty water. It ranges from no useful information to a flood from friends, acquaintances, the media and health professionals. It’s bewildering. My first neurologist said, I know about medicines and procedures for populations. You are an individual. I need to learn about you, what’s important to you, test stuff to see what works, so we can decide what to do next. I say, what about acupuncture, massage, and diet. He says, I am not an expert in other treatments, but I can learn. Whoa! Now here’s a guy I can work with!!! What I learned was that there is very little science that is absolutely always true – We need to breathe clean air, drink plenty of clean water and eliminate regularly. Those are certain. Otherwise there’s uncertainty in almost everything. How do we understand, communicate, and manage uncertainty? Managing uncertainty is a magic lever for best health. Let’s keep exploring this lever.
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
entrepreneur Blue Button lived experience magic lever Health Planning simulation cost Data community health partners storytelling shared decision making grace Politics portal Pregnancy relationships research immigrants People at the Center of Care HIT Quality Measures Just-in-Time decisions adherence disability EMR technology resilience policy Medical Record improv ONC culture medication Exercise sax Community Health OpenNote social media Pain perception health literacy Giving leadership The Quadruple Aim Simplicity questions Determinants of Health habits Outcomes Advocates Behavioral Health Recovery Fibromyalgia engagement informed decision-making Nursing end-of-life goals PCORI safety threshold haiku chronic pain caregiving grief transitions multiple sclerosis Care Partner ePatient Best health Communication fear choices care planning Rest Mentoring access innovation PHR PROM health team palliative care Standard Health Record Pharma interoperability Surveys music consent superpower balance MS evidence mindfulness catalyst employment caregivers customer service standards learning