People at the center of care (individuals, caregivers, family networks, and healthcare professionals) crave knowledge to make sense of and make decisions about their health journey. We need information we can understand that’s relevant to us and our families. Unfortunately, it can seem dry like a desert or like drinking water from a firehose, often dirty water. It ranges from no useful information to a flood from friends, acquaintances, the media and health professionals. It’s bewildering. My first neurologist said, I know about medicines and procedures for populations. You are an individual. I need to learn about you, what’s important to you, test stuff to see what works, so we can decide what to do next. I say, what about acupuncture, massage, and diet. He says, I am not an expert in other treatments, but I can learn. Whoa! Now here’s a guy I can work with!!! What I learned was that there is very little science that is absolutely always true – We need to breathe clean air, drink plenty of clean water and eliminate regularly. Those are certain. Otherwise there’s uncertainty in almost everything. How do we understand, communicate, and manage uncertainty? Managing uncertainty is a magic lever for best health. Let’s keep exploring this lever.
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
policy habits chronic pain Simplicity Fibromyalgia questions engagement improv goals balance caregivers music health team grace magic lever EMR simulation care planning fear superpower catalyst Mentoring Communication grief palliative care sax ePatient mindfulness haiku transitions community ONC The Quadruple Aim Exercise PCORI HIT culture consent portal Standard Health Record leadership lived experience Nursing Quality Measures medication learning MS Best health innovation Pharma Community Health Rest standards OpenNote immigrants Behavioral Health adherence relationships storytelling informed decision-making Determinants of Health perception Advocates Just-in-Time decisions cost social media safety Giving Pregnancy Care Partner Medical Record customer service Blue Button Politics Health Planning disability evidence PHR choices Surveys Outcomes research health partners resilience Data multiple sclerosis employment People at the Center of Care PROM end-of-life threshold access interoperability caregiving technology entrepreneur Recovery health literacy shared decision making Pain