This week I’m experiencing a melding of grief and grace. Grief: My multiple sclerosis is progressing a bit. I’m a little more unsteady, my left leg feels weaker, it’s buckling at times. A disheartening reality of a progressive chronic disease. Why me? Sorry me. What’s my future look like? Grace: I accept what is. I’m weaker. My energy is unflagging. My mind is strong. Music is god sent. My family fills my heart. I’ve meaningful work. I’m writing to you.
I met a fine gentleman at the World Medical Informatics Conference, Steven Overman, a rheumatologist. He co-wrote a book with Joy Selak, You Don’t Look Sick, Living Well with Invisible Chronic Illness. I highly recommend it. Frames my experience and extends my empathy for others, although they write about conditions far worse than mine. I have little, transient pain. I’m functioning well 90% of the time. I’m surrounded by love and compassion at home and at work.
At every party and
At every parting
Aren’t haikus a gas?!