My neurologist has moved away. I’m grieving. Granted he was a curmudgeon with mixed bedside manner. But we were very compatible. He was always available (email return within 24 hrs), he answered my questions, asked if I had any more, educated me, reassured me, and understood my life goals. The electronic medical record was state of the art, meaning only fair. He didn’t use the Open Notes feature (remember curmudgeon). The team of nurse, assistant, and physical therapist were also characters, but competent and has each gone the extra mile for me. Since my job changed it’s been way less convenient for me to go to his office. So now that he’s leaving, I’m reluctant to start with a new doctor in the same practice. How to choose? First I thought of going to a neurologist close by in the hospital my wife works in, but he’s a solo practitioner and not part of their MS team. My departing neurologist recommends one practice, I’m curious about another, Unfortunately, our insurance, from my wife’s employer, has both the MS practices I’m interested in on a Tier 3 – much more expensive. $150/visit versus $35. Money is certainly not my first consideration-we’re doing OK financially, unlike many. How important is the recommendation I received from the departing neurologist? He disses several doctors that I like (again curmudgeon). I want a full MS clinic with other specialists who talk to each other and work together in case/when my MS progresses. I want physical and occupational therapists who know MS. I’m a nurse, I want nurses who know me and know MS. You get the drift. I want a place with an evolving improving electronic health record. I want commitments about response times. I want people who will partner with me and listen to me while giving it to me straight. My previous neurologist once emailed me back, “Oh, get over it.” Another time, “this is new, I can see you tomorrow.” (curmudgeon). I will check out the prospective doc on my first visit. How much does she listen? What kind of coverage is there? I’ve tried to ask about the clinic on patientslikeme.com but no takers. I’m trying to find nurses who might know the nurses at the clinics. We’ll see. I’ll keep you posted. Having an ace team is everything. Losing a member is tough.
Get New Posts via Email
Your support is appreciated
Subscribe to my podcast:
Subscribe to my YouTube channel:
Search This Site
relationships portal grief Advocates Young Adult end-of-life Fibromyalgia Best health MS PHR improv dementia habits coronavirus pediatrics EMR informed decision-making stress health goals Data EHR magic lever health literacy People at the Center of Care health partners storytelling inclusion evidence Behavioral Health sax fear care coordination tpfalumni Care Partner lived experience podcasting caregiving palliative care questions research goals interoperability self-care PCORI Just-in-Time decisions decision-making patient experts policy PTSD culture Holocaust adherence Medical Record Health choices Abridge learning Sickle Cell wheelchair patient engagement transitions health team consent clinical decision support CDS coaching Impact Learning young adults Health equity resilience Nursing Rest engagement trust innovation Exercise Recovery advocacy Blue Button technology community multiple sclerosis Covid19 threshold ePatient leadership pain management CEO of Your Health chronic illness Failure mindfulness caregivers Pain apps shared decision making care planning music chronic pain Outcomes Determinants of Health superpower