My neurologist has moved away. I’m grieving. Granted he was a curmudgeon with mixed bedside manner. But we were very compatible. He was always available (email return within 24 hrs), he answered my questions, asked if I had any more, educated me, reassured me, and understood my life goals. The electronic medical record was state of the art, meaning only fair. He didn’t use the Open Notes feature (remember curmudgeon). The team of nurse, assistant, and physical therapist were also characters, but competent and has each gone the extra mile for me. Since my job changed it’s been way less convenient for me to go to his office. So now that he’s leaving, I’m reluctant to start with a new doctor in the same practice. How to choose? First I thought of going to a neurologist close by in the hospital my wife works in, but he’s a solo practitioner and not part of their MS team. My departing neurologist recommends one practice, I’m curious about another, Unfortunately, our insurance, from my wife’s employer, has both the MS practices I’m interested in on a Tier 3 – much more expensive. $150/visit versus $35. Money is certainly not my first consideration-we’re doing OK financially, unlike many. How important is the recommendation I received from the departing neurologist? He disses several doctors that I like (again curmudgeon). I want a full MS clinic with other specialists who talk to each other and work together in case/when my MS progresses. I want physical and occupational therapists who know MS. I’m a nurse, I want nurses who know me and know MS. You get the drift. I want a place with an evolving improving electronic health record. I want commitments about response times. I want people who will partner with me and listen to me while giving it to me straight. My previous neurologist once emailed me back, “Oh, get over it.” Another time, “this is new, I can see you tomorrow.” (curmudgeon). I will check out the prospective doc on my first visit. How much does she listen? What kind of coverage is there? I’ve tried to ask about the clinic on patientslikeme.com but no takers. I’m trying to find nurses who might know the nurses at the clinics. We’ll see. I’ll keep you posted. Having an ace team is everything. Losing a member is tough.
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
EMR end-of-life grief caregiving health team evidence shared decision making ePatient habits HIT Nursing Medical Record employment consent OpenNote Pregnancy Community Health technology Giving Just-in-Time decisions safety engagement medication caregivers Best health resilience Health Planning disability care planning grace interoperability research improv music simulation customer service People at the Center of Care Simplicity Mentoring Surveys innovation MS health literacy leadership Rest catalyst Blue Button chronic pain fear Communication mindfulness questions PHR Standard Health Record cost community Data sax Quality Measures health partners portal adherence storytelling haiku threshold palliative care multiple sclerosis Recovery Outcomes access PCORI Advocates goals lived experience learning immigrants transitions Exercise balance standards choices magic lever entrepreneur Fibromyalgia Pain perception PROM Determinants of Health Pharma The Quadruple Aim Politics social media ONC relationships Behavioral Health Care Partner superpower culture policy informed decision-making