Melissa Reynolds talks Yoga. With chronic pain and fatigue, there’s such a variation. Some people are always at high levels of pain. Some people vary. There are various stages within fibromyalgia and chronic pain and chronic fatigue. Plus, you have other things going on. Some people also have arthritis where their chronic pain comes from. Or there are other complexities. You can’t say, “this is how you do yoga for chronic pain.” Key is letting people see that they have choices, so there’s never a push. They don’t need to be aiming for anything. They need to listen to their body and do what jells with their body. What feels nice? For too long, we’ve been told you have to push yourself. You’ve got to get to this point. This is your goal. I’m sick of external goals I want to work on my own goals.
Best health builds on trust – trust in people, institutions, information, and solutions. I trust my primary care doc. I trust my chiropractor. I trust my instincts. I trust my gut. I do. I trust my wife. She trusts me. Trust doesn’t mean blind following. Rather trust leads to more control or feeling more in control. I need trust when I’m in a crisis and can’t think clearly. I listen to my immediate family and my two lead docs (in that order). I’m likely to do what they recommend. Trust is for when I need to decide but can’t or don’t want to. Trust is for times of uncertainty.
My compatriot, Geri Lynn Baumblatt, consults and advocates on the overlapping worlds of employees, family caregivers, employers, and support, especially in nursing. In short, bread winners also caring for family and friends with acute and chronic illnesses and disabilities. I picture these overlapping worlds as balloons mashing up against each other trying not to burst. If you’re a nurse, an employer, a boss, or a caregiving staff member, this chat about the Difference Collaborative is for you.
I depend on my team – laypeople and professionals – to help me understand my body, abilities, circumstances, moods, and reactions. Profound understanding promotes self-appreciation – loving myself as I am. On my professional team, my primary care doc, chiropractor, massage therapist, neurologist, optometrist, physical therapist, and acupuncturist are the strongest and most important professionals for me. I’ve learned which of their skills help me, how they communicate with me, and what work I need to do to maximize their impact. This episode begins an intermittent series about the professionals on my health team, starting with Dr. Keith Puri, my chiropractor. I’ve learned much from Dr. Puri about maximizing my gross motor capabilities through good habits. I’m indebted to him. Listen in or read on.
Sometimes I wish I had fallen in love with the flute. It would be easier than carrying the 40-pound sax up and downstairs. But it motivates me to keep doing my squats and increasing upper body strength as my lower body function diminishes. So, engaging with sax is perfect for me. Using different parts of my brain, learning every day, keeping me humble, and spiritually strong. Are you still playing the baritone sax? is a spot-on personal health outcome for me. So merry holidays everyone. I hope you have a musical season
Laura Marcial talks with us about making the tech sausage of Clinical Decision Support: Guidelines, evidence, rules, knowledge engineers. Clinical decision-making still depends on human trust time, talk, control, and connection. Read More
As a person who owns my journey, my learning journey, in this case, I explore the options, the resources that are available to me. Then I direct myself to make the right choices and learn what I need to learn. At the same time, it’s learning by doing. That’s a very important part because we can learn a lot of things in theory. But can I communicate that knowledge? Does it bring us benefit? It doesn’t help us with our life unless we put this knowledge to work. So, I believe in learning by doing and learning and exploration. So, again, we learn from other people. We learn by doing our work and continuing to explore options so we can improve what we know, and the work we do.
I’m not a religious person, but I am spiritual. I’m at one in my relationship with a higher power, God, if you will, when I recognize and feel gratitude. Gratitude for living at peak capacity, for my loving family and friends, for an engaged health team, for the Forward Link community, for music, and for clean air and water.
On this first anniversary of my podcasting journey, with 52 episodes and 3,000 downloads under my belt, thanks for your continuing support. I’m grateful for you and all you do. Happy Thanksgiving! Best health, you and yours!
Careful what you wish for. Health equity and participatory medicine depend on the widespread meaningful use of patient family advisors. The trickle of such advisors should be a stream. Unfortunately, even if the supply could meet demand, health care administrators, researchers, entrepreneurs lack skill in making good use of patient family advisors. Libby Hoy leads Patient Family-Centered Care Partners, a small organization with a large vision for improving the quality, safety, and experience of healthcare through the development of authentic partnerships from the bedside caregiving relationship to the boardroom.