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Podcasts

16, Sophomore, All-In

By | ePatient, Musician, Podcasts | One Comment

Welcome to the Health Hats podcast series about young adults transitioning from pediatric to adult medical care. In this series, I interview young adults with complex medical conditions, their parent or guardians, point-of-care clinicians caring for these young adults, and whoever else I find of interest in this fascinating, frustrating, heart-breaking, and inspiring world.

This second podcast of the series is with Sara Lorraine Snyder, a fine, eloquent, young woman who has lived her entire life with chronic medical issues. She’s learning to drive her own healthcare and manage the transition to adult medical care.

“If you were playing with the team for football or whatever and then they come you come in the next practice and half of your team is completely new people that you don’t even know and  then you don’t know how to effectively work with that team so that in the end of the day you can win or like achieve, whatever you need to.” Sara Lorraine Snyder

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Three Young Adults. 22 Years.

By | Advocate, Caregiver, Podcasts, Uncategorized | No Comments

Interview with Jill Woodworth, mother of 4, three with Tuberous Sclerosis, managing the transition from pediatric to adult medical care. Fascinating, frustrating, heart-breaking, and inspiring. Silos and boundaries,  crossing the threshold, primary physician,  autonomy, self-management. One of the scenarios with the most boundaries, cracks, and thresholds is where young adults with complex medical conditions transition from pediatric to adult care. “If there’s any communication, that has to go through me. Unfortunately, I have to network that system and that’s just really cumbersome.” “I can also help other people that have questions about how to transition. I’m certainly not an expert. But boy, it is something that I wish I always say do it the earlier the better. The earlier you can think about it the better.” “He’s learning. Like I taught him to get his own meds, you know, it’s kind of meeting each one of them where they are and what they can do. But it’s hard.” Read More

Unite to share data for best health

By | Advocate, Caregiver, Clinician, ePatient, Podcasts, Researcher | No Comments

Data sharing improves health. But it’s difficult and unusual. Not sharing leads to error, wasted time, Can we could work together to make data sharing routine? Read More

Lessons from the Clowns When Going to the Doctor’s

By | Caregiver, Clinician, ePatient, Family man, Podcasts | No Comments

What can the clowns can teach us as patients and caregivers about relaxing, reading the room, figuring out what you’re there to do, and not ending up more stressed than you went in. Maybe even having a bit of fun. In this podcast we will speak with Jason Stewart, a clown at Boston Children’s and listen in on a working session I led at the National Caregiving Conference in Chicago this past November, entitled, Reading the Room and Yourself. Lessons We Can Learn from the Clowns When We Go to the Doctor’s Office.  Lessons from the clowns? Humor, humanity, failure. Reading the room. You are not alone. Read More

Setting Personal Health Goals

By | Caregiver, ePatient, Podcasts | No Comments

Episode Summary

We’re going somewhere with our best health journey. Destination: Personal health goals. If you’re well, stay well. If you’re acutely ill, get over it. If you’re chronically ill or dying, live the best life possible. There’s a difference between medical and personal health goals. Onward. Read More

Equity: more to achieve the same

By | Advocate, Caregiver, Clinician, Consumer, ePatient, Leader, Podcasts | No Comments

Diversity, equality, and equity are not the same. Diversity = the inclusion of differences. Equality = leveling the playing field. Equity = People have the same opportunity to achieve best physical, mental, and spiritual health no matter their social circumstances, biology, genetics, or physical environment. Bias impacts them all. Reaching for equity requires moving toward systems designed and built for inclusion and best health outcomes. Read More

Pillow, pills, poop, piss, and pain

By | Caregiver, Family man, Podcasts | No Comments
  • Blood, sweat, tears shared by two.
  • Helping one end and another begin.
  • A disaster that ultimately gives back.
  • Hearts clubbed by diamonds in spades.
  • We learned, we cried, we continued.

Episode Summary

Denise Brown of caregiving.com asked caregivers for their 6-word story about caregiving. Brilliant!

Welcome to Men Caregivers, Part 2, the Panel.  Part 1 was interviews with the panel, Ben Carter, Patrick Egan, Jolyon Hallows, and yours truly. All at the National Caregiving Conference in Chicago in November 2018.

Here are some of our 6-word stories:

  • We did it because we could
  • Pillows, pills, poop, piss, and pain
  • 20 years a caregiver. I adapted.
  • Key word isn’t ‘men’, it’s ‘caregiving’
  • Personal care? It depends? Mother, wife?
  • Managing the Dis Ease of Disease

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Men Caregivers Part 1 Podcast

By | Caregiver, Family man, Podcasts | No Comments

Four of 6.4 million men caregivers muse on their varied experience, emotions, challenges, joys. We did it because we wanted to and we could. Great stories! Read More

Healthy Homes Advocacy

By | Advocate, Podcasts | No Comments

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Episode Summary

Something is wrong here.

I feel like crap.

This isn’t fair.

I don’t want anyone else to ever experience what my kid experienced.

At some point, when we feel strong enough or mad enough, we want to take action to improve health. This is advocacy. Many of us advocate for someone, sometime. Or we want to. Ourselves, our family members, our cronies, our community. What lessons can we learn from a master at advocacy? I interview Mary Sue Schottenfels, Director of ClearCorps Detroit, a seasoned community organizer, a master advocate.

The lessons I heard from Mary Sue were:

  • Don’t go it alone-join, network, and collaborate.
  • Keep your word, follow through.

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Trailer: Health Hats, the Podcast

By | Podcasts | No Comments

HHP000_Episode Summary

Best health is living at peak performance no matter our biology, abilities, or our circumstances. Reaching best physical, mental, and spiritual health is complex, frustrating, frightening, and oh so rewarding.  I’ve worn many hats during my life in healthcare. I’m a person with Multiple Sclerosis, I’m a nurse who’s worked in the community, in hospitals, in managed care, and behavioral health.  I’ve been care partner to several family member’s end-of-life journeys. I’m a musician, an Opa, a storyteller, and a patient/caregiver activist.  Wearing all these hats, I know a little bit about a lot of healthcare and a lot about a little bit of healthcare. I  interpret the Tower of Babel so You can drive your own train and achieve your personal and community health goals. In this podcast, I will invite passionate, skilled people to muse with me about life, death, advocacy, research, data, healthcare delivery, anything that piques my interest. Let’s make some sense of all this!

Episode Notes

Please find me at  https://www.health-hats.com/.  or subscribe to my podcast on iTunes or wherever you get your podcasts. 

About the Show

Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen and I have worn many hats in my 40+ years in healthcare as a patient, caregiver, nurse, informaticist, and leader. Everyone wears many hats, but I wear them all at once.  We will listen and learn about what it takes to adjust to life’s realities in healthcare’s Tower of Babel.  Let’s make some sense of all this.

My guests and I reflect on what works for people, professionals, and communities in their journeys toward best health: learning, making choices, communicating, and adjusting to realities. We can range from personal, clinical, technical, entrepreneurial, organizational, to whatever interests me at the moment. Join the ride!

Readers of Health Hats, the Blog, we will publish a Podcast in at least two of each month’s weekly posts. To subscribe go to the blog https://www.health-hats.com/

Hey there, this is Danny. Best health is living at peak performance no matter our biology, abilities, or our circumstances. Reaching best physical, mental, and spiritual health is complex, frustrating, frightening, and oh so rewarding.