Category

Leader

Independent Community Benefit Practice

By Advocate, Researcher, ePatient, Leader, Podcasts No Comments

Michael Mittelman received three kidneys via transplant, his current kidney from a living donor, his mother. He identifies as an advocate for organ donation, specifically, living organ donors. He also works across disease areas to help companies understand and involve patients. He cares deeply about access and equity in healthcare. For this episode, I’m going to test calling our work as advocates, activists, and partners, an Independent Community Benefit Practice.

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CEO of Your Health Now

By Advocate, Caregiver, ePatient, Leader, Family man, Podcasts One Comment

Feeling my oats as CEO of my Health! I lead and manage a company dedicated to my health. Let’s pause and gather this frame into our brains and sinew with the help of the past few interviewees. Then we’ll explore more in the next few episodes.  Come aboard and listen or read.

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A Learning Community for CEOs of Your Health

By Advocate, ePatient, Leader, Podcasts One Comment

Can I learn about learning to become a better CEO of my health from a high school teacher? Absolutely, Matt Neil and I explore enrollment in learning, health in school, learning with peers, planting seeds, and dignity and respect in this free-wheeling conversation.

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CEO of My Health

By Advocate, ePatient, Clinician, Leader, Podcasts One Comment

I want to be a better CEO of my health and health team. Better at learning, managing, leading, and deciding. Most of us are only fair at any of it. Few are good at all of it. And our lives depend on them all. Let’s explore this further together in future podcasts. I encourage you to share your questions and thoughts with me.

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Building Capacity. Building Power. Citizen Power.

By Advocate, Caregiver, ePatient, Leader, Consumer, Podcasts 4 Comments

Capacity for best health ebbs and flows. That’s life. Some call citizen capacity – “patient engagement.” But that’s too weak. Growing and sustaining citizen capacity is citizen power. Our personal and community health depends on it.
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Get along. Get it done. Governance

By Advocate, Leader, Consumer 3 Comments

If your team, organization, the project doesn’t seem worth your time or smells fishy, check governance. Change is tough without understanding who makes decisions and how. Activists, professional people, community folks – anyone who’s part of a team knows the difference between a well-run team, an effective meeting, and the duds. Read More

Special edition for blog subscribers only

By Advocate, Researcher, Caregiver, ePatient, Clinician, Leader, Informaticist, Consumer, Family man, Musician One Comment

Health Hats, The Blog is changing. I’m the same 2-legged white man of privilege, living in a food oasis, who can afford many hats, as I was a couple of months ago. But my advocacy, ministry, channel are changing.  I fell into this podcasting fellowship and here I am a podcaster, too. I’m having a blast. Loving the sound medium. The blog has been a mouthpiece for me. I tested the limits of showing how full of myself I can be. And it allowed me to think out loud.

You are my loyal audience. I write and produce for you. I start with a germ that’s mine. A question, an idea, an initiative I want to think through. Then I go to it with you in mind.  I ask myself, why should you care about whatever? It’s important to me, why do I think it should be important to you? As I write or produce, the germ sprouts, grows into something unexpected, almost all the time.  I’m amazed.

The thing about blogging is that’s almost always one-way. I average 1.3 comments per blog post over 6+ years. I’m getting a bit tired of myself. There’s so much about which I know enough to be dangerous. Podcasting can be a two-way street. Me learning about what interests me. I also recognize that some people like to read, others like to listen, and still others like to watch. So, I’m trying to develop all three media: blog, podcast, YouTube videos.

I’m part of a podcasting fellowship: eight weeks of daily coursework with 300 other budding podcasters from all over the world. We created a supportive community during the course. Now that it’s over, over 100 of us are still engaging, sharing, cheerleading, learning together. A model virtual community (I smell another blog post). I’m a budding sound engineer, producer, and interviewer. I added transcripts for readers and deaf folk. Be still my beating heart. Already, I’ve had an ode to my boy, Mike Funk, met men in caregiving, channeled clowns in the doctors office, explored health equity. I’m working on a series about young adults transitioning from pediatric to adult medicine from the young adult and parent perspective, and conceiving a series about pain management.

But I never asked you if this change to blogging plus podcasting was OK with you, what you think of it, or for your constructive criticism. This is me asking you now.

  • How do you like this transition and change I’m making?
  • Do you listen to the podcast? Read the show notes?
  • Do you still find the blog posts, show notes, written stuff valuable?
  • What do you think about the topics, the guests, the music, the quality of sound, the noise?
  • How about the length? It’s ranged from 20 to 68 minutes.
  • I’m using my cousin’s Joey van Leeuwen’s music. Isn’t he great!?

I was going to send you a survey, but I’d rather just hear from you. I’m eager for observations, atta boys, I’m outta heres, creative ideas, topic ideas, interviewees?

Talk to me, please. Email me at danny@health-hats.com!

And thank you for your loyalty.  Weekly for six years, OMG! We’ve been together a long time in blog years. Onward!

 

Equity: more to achieve the same

By Advocate, Caregiver, ePatient, Clinician, Leader, Consumer, Podcasts No Comments

Diversity, equality, and equity are not the same. Diversity = the inclusion of differences. Equality = leveling the playing field. Equity = People have the same opportunity to achieve best physical, mental, and spiritual health no matter their social circumstances, biology, genetics, or physical environment. Bias impacts them all. Reaching for equity requires moving toward systems designed and built for inclusion and best health outcomes. Read More

First, We Listen

By Advocate, ePatient, Clinician, Leader No Comments

As a blogger, I talk. Every week, I talk. I talk about what I experience, what I think, and what I think I know. As my web/social media coach says, “You’re a content machine.” Now that I’ve started podcasting, I realize that I know enough to be dangerous. Podcasting is an opportunity for me to listen and learn. Listening has always been a challenge for me. Read More

Pain Management Choices: One Person’s Point-of-View

By Advocate, Researcher, Caregiver, ePatient, Clinician, Leader, Informaticist No Comments

Pain and choices mix, but not too well. A sudden new pain requires professional attention and a pill – I gotta get over this. With severe chronic pain, I pray for some choices that I know might work. I want choices to prevent the pain – a routine. When the pain breaks through I want at least four things I can try. First non-drug that I can do myself (like heat, cold, vibration, meditation), then non-drug help from others, (say, massage, chiropractic), then less side effect drugs (Tylenol, cannabis…).  Finally, pocket therapy – something I’d rather not take, but it’s good to have in my pocket, just in case. So, that’s me in particular circumstances.

Almost everyone with chronic illness experiences chronic pain. Chronic pain in the US costs more than $600 billion annually in health care costs and lost worker productivity. I attended and presented at the Agency for Healthcare Quality and Research (AHRQ)-supported Patient-Centered Clinical Decision Support (PCCDS) Learning Network annual meeting (phew, a mouthful!) focused on decision-making in pain management and reducing opioid use. My job was to keep it real.

Please find the audio and slide deck here on my YouTube channel. It’s 44 minutes long with the Q&A portion. Here you can find my web resource page with other pain management resources. It’s a work in progress and will grow over time. Feel free to use any or all of it. I operate under Creative Commons. That means: please give me credit (attribution by Danny van Leeuwen/Health Hats). You can stop reading here or read a brief summary of the talk below. Read More