Category

Informaticist

Person-First Safe Living in a Pandemic #1

By Advocate, Researcher, Caregiver, ePatient, Clinician, Informaticist, Family man, Podcasts 5 Comments

How can laypeople find up-to-date, trustworthy answers to questions they have about living safely in an emergency, when they have them, in a useful manner? Part 1: a person-first approach for researchers & content creators to help people and their communities find trusted guidance to answer their questions about living safely in a Covid-19 world.

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Safe Living in a Pandemic – Help!?

By Advocate, Researcher, Caregiver, ePatient, Informaticist, Family man, Podcasts 5 Comments

Why can’t we fill in personal data and routine community COVID stats into a web form and calculate our risk of infection and mortality? Anyone working on it? Plus another dose of unintended consequences. A brief episode with Health Hats.

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CDS. Listen, Learn, Informed Choice.

By Researcher, Informaticist, Podcasts No Comments

How can we scale patient-caregiver engagement in CDS (Clinical Decision Support)? CDS as learning health systems? Interview with Lacy Fabian at MITRE and Ed Lomotan at AHRQ. CDS Connect a library of medical recommendations made useful for programming into electronic records, apps, and software so patients, caregivers, and clinicians can use them as they make choices together.

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Imagine: Leverage Abilities. Access Better Solutions.

By Advocate, ePatient, Informaticist, Consumer, Podcasts No Comments

Create an inclusive, accessible co-working space for aspiring entrepreneurs with disabilities, small startups, or groups that serve the disability community. QuirkLaabs. hollarhype. Puffin Innovations.

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Trust: Willing to be Vulnerable. Worth the Investment.

By Advocate, Researcher, ePatient, Clinician, Leader, Informaticist, Family man, Podcasts One Comment

Best health builds on trust – trust in people, institutions, information, and solutions. I trust my primary care doc.  I trust my chiropractor. I trust my instincts. I trust my gut. I do. I trust my wife. She trusts me. Trust doesn’t mean blind following. Rather trust leads to more control or feeling more in control. I need trust when I’m in a crisis and can’t think clearly. I listen to my immediate family and my two lead docs (in that order). I’m likely to do what they recommend. Trust is for when I need to decide but can’t or don’t want to. Trust is for times of uncertainty.

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