Category

Family man

Inspire Me Once, Inspire Me Twice

By ePatient, Family man, Musician, Podcasts No Comments

Chat with Sara Lorraine Snyder: ‘As a person living with a disability, we’re already used to the world being able to hurt us or bring us down, whether from other people judging or saying things or your body being funky and doing not behaving in an optimal way. Just knowing that now there’s something, especially for people like me living with lung conditions and whatnot that there’s something that can very well take us out if it so pleased.’

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Covid-19: End-of-Life Choices

By Advocate, Caregiver, ePatient, Family man, Podcasts No Comments

At least 67,000 individuals have died of Covid19 in the US and 244K worldwide so far. Each death is a family’s grief. How do we advocate for ourselves, each other? Palliative care = feeling less miserable. Have you discussed end-of-life and palliative care with your family? Do it now.

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Share the Stories. Help the Helpers.

By ePatient, Family man, Leader, Podcasts 3 Comments

Stories are mirrors. It’s really about us. Our stories matter. Tell your story. As much as you can. Meld the stories together. Share the tragedy. Share the silver linings. Honor the caregivers. Help the helpers.

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Temporarily Able-Bodied People. We’re in This Together.

By Advocate, Caregiver, Clinician, ePatient, Family man, Podcasts 2 Comments

Covid19. Sad, angry, grieving. No grief without love. People with different abilities have a 15-min advantage on the temporarily able-bodied. Connect, learn, appreciate.

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Mind Body Spirit. Empathy and Social Justice.

By Advocate, Family man, Podcasts No Comments

In Ecuador, I found there were the traditional indigenous views of health melding with Western medicine. So, your physical and melding with Christianity as well. Your physical, spiritual, and mental health felt much more interwoven. You might see a shaman and pick up some medications from your doctor on your way to the church to say a prayer.

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Trust: Willing to be Vulnerable. Worth the Investment.

By Advocate, Clinician, ePatient, Family man, Informaticist, Leader, Podcasts, Researcher 2 Comments

Best health builds on trust – trust in people, institutions, information, and solutions. I trust my primary care doc.  I trust my chiropractor. I trust my instincts. I trust my gut. I do. I trust my wife. She trusts me. Trust doesn’t mean blind following. Rather trust leads to more control or feeling more in control. I need trust when I’m in a crisis and can’t think clearly. I listen to my immediate family and my two lead docs (in that order). I’m likely to do what they recommend. Trust is for when I need to decide but can’t or don’t want to. Trust is for times of uncertainty.

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