Category

Family man

Safe Living in a Pandemic – Help!?

By Advocate, Researcher, Caregiver, ePatient, Informaticist, Family man, Podcasts One Comment

Why can’t we fill in personal data and routine community COVID stats into a web form and calculate our risk of infection and mortality? Anyone working on it? Plus another dose of unintended consequences. A brief episode with Health Hats.

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Inspire Me Once, Inspire Me Twice

By ePatient, Family man, Musician, Podcasts No Comments

Chat with Sara Lorraine Snyder: ‘As a person living with a disability, we’re already used to the world being able to hurt us or bring us down, whether from other people judging or saying things or your body being funky and doing not behaving in an optimal way. Just knowing that now there’s something, especially for people like me living with lung conditions and whatnot that there’s something that can very well take us out if it so pleased.’

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Covid19: End-of-Life Choices

By Advocate, Caregiver, ePatient, Family man, Podcasts No Comments

At least 67,000 individuals have died of Covid19 in the US and 244K worldwide so far. Each death is a family’s grief. How do we advocate for ourselves, each other? Palliative care = feeling less miserable. Have you discussed end-of-life and palliative care with your family? Do it now.

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Share the Stories. Help the Helpers.

By ePatient, Leader, Family man, Podcasts One Comment

Stories are mirrors. It’s really about us. Our stories matter. Tell your story. As much as you can. Meld the stories together. Share the tragedy. Share the silver linings. Honor the caregivers. Help the helpers.

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Temporarily Able-Bodied People. We’re in This Together.

By Advocate, Caregiver, ePatient, Clinician, Family man, Podcasts 2 Comments

Covid19. Sad, angry, grieving. No grief without love. People with different abilities have a 15-min advantage on the temporarily able-bodied. Connect, learn, appreciate.

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