Category

Family man

2021 Holiday Letter: Trust

By Advocate, Researcher, Caregiver, ePatient, Clinician, Leader, Family man, Musician, Podcasts 2 Comments

Overflowing with gratefulness in the New Year. Connection, family, music, activism. Sobered by grief for 1000s of lives lost each day. Theme this year: Trust. Read, listen, or watch this episode. Read More

Person-First Safe Living in a Pandemic #1

By Advocate, Researcher, Caregiver, ePatient, Clinician, Informaticist, Family man, Podcasts 5 Comments

How can laypeople find up-to-date, trustworthy answers to questions they have about living safely in an emergency, when they have them, in a useful manner? Part 1: a person-first approach for researchers & content creators to help people and their communities find trusted guidance to answer their questions about living safely in a Covid-19 world.

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Safe Living in a Pandemic – Help!?

By Advocate, Researcher, Caregiver, ePatient, Informaticist, Family man, Podcasts 5 Comments

Why can’t we fill in personal data and routine community COVID stats into a web form and calculate our risk of infection and mortality? Anyone working on it? Plus another dose of unintended consequences. A brief episode with Health Hats.

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Inspire Me Once, Inspire Me Twice

By ePatient, Family man, Musician, Podcasts No Comments

Chat with Sara Lorraine Snyder: ‘As a person living with a disability, we’re already used to the world being able to hurt us or bring us down, whether from other people judging or saying things or your body being funky and doing not behaving in an optimal way. Just knowing that now there’s something, especially for people like me living with lung conditions and whatnot that there’s something that can very well take us out if it so pleased.’

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