What can the clowns can teach us as patients and caregivers about relaxing, reading the room, figuring out what you’re there to do, and not ending up more stressed than you went in. Maybe even having a bit of fun. In this podcast we will speak with Jason Stewart, a clown at Boston Children’s and listen in on a working session I led at the National Caregiving Conference in Chicago this past November, entitled, Reading the Room and Yourself. Lessons We Can Learn from the Clowns When We Go to the Doctor’s Office. Lessons from the clowns? Humor, humanity, failure. Reading the room. You are not alone. Read More
We’re going somewhere with our best health journey. Destination: Personal health goals. If you’re well, stay well. If you’re acutely ill, get over it. If you’re chronically ill or dying, live the best life possible. There’s a difference between medical and personal health goals. Onward. Read More
Diversity, equality, and equity are not the same. Diversity = the inclusion of differences. Equality = leveling the playing field. Equity = People have the same opportunity to achieve best physical, mental, and spiritual health no matter their social circumstances, biology, genetics, or physical environment. Bias impacts them all. Reaching for equity requires moving toward systems designed and built for inclusion and best health outcomes. Read More
- Blood, sweat, tears shared by two.
- Helping one end and another begin.
- A disaster that ultimately gives back.
- Hearts clubbed by diamonds in spades.
- We learned, we cried, we continued.
Denise Brown of caregiving.com asked caregivers for their 6-word story about caregiving. Brilliant!
Welcome to Men Caregivers, Part 2, the Panel. Part 1 was interviews with the panel, Ben Carter, Patrick Egan, Jolyon Hallows, and yours truly. All at the National Caregiving Conference in Chicago in November 2018.
Here are some of our 6-word stories:
- We did it because we could
- Pillows, pills, poop, piss, and pain
- 20 years a caregiver. I adapted.
- Key word isn’t ‘men’, it’s ‘caregiving’
- Personal care? It depends? Mother, wife?
- Managing the Dis Ease of Disease
Something is wrong here.
I feel like crap.
This isn’t fair.
I don’t want anyone else to ever experience what my kid experienced.
At some point, when we feel strong enough or mad enough, we want to take action to improve health. This is advocacy. Many of us advocate for someone, sometime. Or we want to. Ourselves, our family members, our cronies, our community. What lessons can we learn from a master at advocacy? I interview Mary Sue Schottenfels, Director of ClearCorps Detroit, a seasoned community organizer, a master advocate.
The lessons I heard from Mary Sue were:
- Don’t go it alone-join, network, and collaborate.
- Keep your word, follow through.
Best health is living at peak performance no matter our biology, abilities, or our circumstances. Reaching best physical, mental, and spiritual health is complex, frustrating, frightening, and oh so rewarding. I’ve worn many hats during my life in healthcare. I’m a person with Multiple Sclerosis, I’m a nurse who’s worked in the community, in hospitals, in managed care, and behavioral health. I’ve been care partner to several family member’s end-of-life journeys. I’m a musician, an Opa, a storyteller, and a patient/caregiver activist. Wearing all these hats, I know a little bit about a lot of healthcare and a lot about a little bit of healthcare. I interpret the Tower of Babel so You can drive your own train and achieve your personal and community health goals. In this podcast, I will invite passionate, skilled people to muse with me about life, death, advocacy, research, data, healthcare delivery, anything that piques my interest. Let’s make some sense of all this!
Please find me at https://www.health-hats.com/. or subscribe to my podcast on iTunes or wherever you get your podcasts.
About the Show
Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen and I have worn many hats in my 40+ years in healthcare as a patient, caregiver, nurse, informaticist, and leader. Everyone wears many hats, but I wear them all at once. We will listen and learn about what it takes to adjust to life’s realities in healthcare’s Tower of Babel. Let’s make some sense of all this.
My guests and I reflect on what works for people, professionals, and communities in their journeys toward best health: learning, making choices, communicating, and adjusting to realities. We can range from personal, clinical, technical, entrepreneurial, organizational, to whatever interests me at the moment. Join the ride!
Readers of Health Hats, the Blog, we will publish a Podcast in at least two of each month’s weekly posts. To subscribe go to the blog https://www.health-hats.com/
Hey there, this is Danny. Best health is living at peak performance no matter our biology, abilities, or our circumstances. Reaching best physical, mental, and spiritual health is complex, frustrating, frightening, and oh so rewarding.
Best Health includes physical, mental, and spiritual health. Michael Funk, my son, died at age 26 on November 18, 2002, of metastatic melanoma. Mike found his best spiritual health in the last year of his life as he died. As Mike said, I wasn’t born with a tattoo telling me how long I had to live. This first episode of Health Hats, the Podcast, celebrates Mike’s journey through a montage of an interview with Mike several months before he died, a conversation with Bob Doherty who conducted that interview, and stories about my experiences with Mike. Listen as we try to make sense of this reality. Read More