Category

ePatient

Temporarily Able-Bodied People. We’re in This Together.

By Advocate, Caregiver, Clinician, ePatient, Family man, Podcasts 2 Comments

Covid19. Sad, angry, grieving. No grief without love. People with different abilities have a 15-min advantage on the temporarily able-bodied. Connect, learn, appreciate.

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The Zen of Relationship-Centered Measurement and Engagement

By Caregiver, Clinician, ePatient, Leader, Podcasts, Researcher No Comments

A conversation with Ellen Schultz. How can we best commit to improving what’s vital in our local health care system? Commitment is will, resources, and time. Measuring can’t take more effort than improving. Engage people at the center: patients, clinicians, and the people that support them. Focus on relationships. Measure consistency and sustainability. As in any health effort – exercise weak muscles.

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Family Practice – The Cornerstone of My Team

By Caregiver, Clinician, ePatient, Podcasts No Comments

I love my family doc. If you’re not happy with your primary care doc, find someone you trust to help you find another one. She’ll be your cornerstone. Interview with Dr. Laura Zucker.

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Peer Support: Patience and Kindness

By Advocate, ePatient, Podcasts No Comments

Everybody possesses innate wisdom about themselves. I don’t know the answer to your question, but I believe that you know the answer to your question. I’m here to provide you with any information you need, support to access resources in the community, or just to be patient and listen. Interview about Peer Support with Keith Scott from Advocates, Inc.

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Bioethics: Autonomy. For Me, On Behalf of Me.

By Advocate, Caregiver, Clinician, ePatient, Leader, Podcasts No Comments

Bioethics, the term first coined by someone (who is a controversy) in 1971, includes four principles – respect for autonomy, nonmaleficence (do no harm), beneficence (for me, on behalf of me), and justice. Ken Goodman spoke about two of the four principles autonomy and beneficence. As with much when you start peeling back the layers, bioethics are not simple, not black and white, rather shades of grey.

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Accessible Yoga: Honor Your Body

By Advocate, ePatient, Podcasts One Comment

Melissa Reynolds talks Yoga. With chronic pain and fatigue, there’s such a variation.  Some people are always at high levels of pain. Some people vary. There are various stages within fibromyalgia and chronic pain and chronic fatigue. Plus, you have other things going on.  Some people also have arthritis where their chronic pain comes from. Or there are other complexities. You can’t say, “this is how you do yoga for chronic pain.” Key is letting people see that they have choices, so there’s never a push. They don’t need to be aiming for anything. They need to listen to their body and do what jells with their body. What feels nice? For too long, we’ve been told you have to push yourself. You’ve got to get to this point.  This is your goal.  I’m sick of external goals   I want to work on my own goals.

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