Category

Caregiver

Employed Family Caregivers – The Difference Collaborative

By | Advocate, Caregiver, Clinician, Leader, Podcasts, Researcher | No Comments

My compatriot, Geri Lynn Baumblatt, consults and advocates on the overlapping worlds of employees, family caregivers, employers, and support, especially in nursing. In short, bread winners also caring for family and friends with acute and chronic illnesses and disabilities. I picture these overlapping worlds as balloons mashing up against each other trying not to burst. If you’re a nurse, an employer, a boss, or a caregiving staff member, this chat about the Difference Collaborative is for you.

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Retirement – Micro-stepping with Mini-goals

By | Caregiver, ePatient, Family man, Musician, Podcasts | 2 Comments

Cynthia Meyer created the Second Wind Movement for retirees to live their best life. She teaches mini-goals and micro-stepping towards the 5 Rings of Retirement, Growth, Health, Finance, Community, and Giving Back. Listen in or read on.

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Clinical Decision Support Technology – Still Human

By | Advocate, Caregiver, Clinician, ePatient, Informaticist, Podcasts, Researcher | No Comments

Laura Marcial talks with us about making the tech sausage of Clinical Decision Support: Guidelines, evidence, rules, knowledge engineers. Clinical decision-making still depends on human trust time, talk, control, and connection. Read More

Partner with People at the Center End-to-End

By | Advocate, Caregiver, Clinician, ePatient, Informaticist, Leader, Podcasts, Researcher | No Comments

Despite what anyone tells you, Clinical Decision Support (CDS) is an experiment. It only gets better with use. We, patients and caregivers, should try it, whatever it is, and learn. Learn what helps us make decisions and what doesn’t.

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Caring for Parents. It’s Their Life. Open the Door.

By | Caregiver, ePatient, Family man, Podcasts | 2 Comments

Allie, Becky, and Jenni have gone through the gut-wrenching experience of trying to manage the physical and cognitive deterioration of their parents. How do you partner from a distance with reluctant parents? Do you intervene? How do you intervene? How much do you intervene? What’s best for them?  How do we maintain our boundaries as we help parents we love so much and make us so crazy?

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Humanity Before Technology – Clinical Decision Support

By | Caregiver, Clinician, ePatient, Informaticist, Podcasts, Researcher | No Comments

Walking through the who, what, where, and why of clinical decisions and Clinical Decision Support? Why we should care and what can we do? I’m also going to talk about uncertainty, the three T’s (Time, Trust and Talk) and the two C’s (Control and Connection).

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CEO of Your Health Now

By | Advocate, Caregiver, ePatient, Family man, Leader, Podcasts | One Comment

Feeling my oats as CEO of my Health! I lead and manage a company dedicated to my health. Let’s pause and gather this frame into our brains and sinew with the help of the past few interviewees. Then we’ll explore more in the next few episodes.  Come aboard and listen or read.

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Crafting Solutions to Conflict

By | Advocate, Caregiver, Clinician, ePatient, Podcasts | No Comments

As CEO of our health we manage, we lead, we decide, we learn. In the role of CEO, or as team members for others, we engage in many difficult conversations. These difficult conversations often include sharing information, tracking plans, activities, and symptoms, making decisions, managing circumstances, and adjusting to personalities. We don’t understand. We’re overwhelmed. We can’t decide. Emotions get the best of us. We have trouble listening or caring. The opportunity for conflict between any of our health team seems endless. Learn positive ways to approach conflict with Jane Beddall. Read More

Illness-Induced PTSD. Not Only Patients

By | Advocate, Caregiver, Clinician, ePatient, Podcasts | No Comments

People who live with long term, complex chronic illness suffer from extreme stress and trauma together and alone. ‘Live with’ meaning they’re my diagnoses or I’m caring for someone with those challenges. ‘Caring for someone’ can be professionals or family and non-family, and sometimes community. The intensity of acute crises, rehabilitation, and maintenance (living life) all cause unforgettable and deep-rooted stress. Crazy-making stress.  Illness-induced Post Traumatic Stress Disorder (PTSD). To explore PTSD, I asked Nancy Michaels to join us. She spent 6-months in the ICU, two-months in a coma, with a liver transplant and brain surgery to boot. She most remembers dignity and control or lack thereof. It affected more than her. Listen in.

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Pain: The Solution – Many Solutions

By | Advocate, Caregiver, Clinician, ePatient, Podcasts, Researcher | No Comments

You’re in for a treat. Amy Baxter, pediatric emergency physician, pain researcher, and device manufacturer, is the CEO and Founder of Pain Care Labs. We talked about:

  • Pain is inevitable, it’s life. Unnecessary pain is wasteful and it sucks.
  • Doctors’ superpower is writing prescriptions. While lots of research has been done about non-pharm pain, doctors aren’t familiar with it.
  • Public policy doesn’t support non-drug solutions. It funnels people to doctors and medication.
  • Attitude and attention impact pain. If you focus on life rather than pain, the pain can be more manageable. We’re in control.
  • The 1-10 pain scale has limited value unless you’re evaluating what’s not working for acute pain.
  • We could teach our kids about pain differently. Think, dancers and other athletes.
  • While cannabis may be helpful for chronic pain, it’s not a panacea, especially for young brains.

We learned about TENS units, Buzzy, the Meissner Corpusle, the thalamus (the brains CPU/microprocessor), the Schmidt Sting Pain Scale, the IKEA bias,  beta nerves and mechanoreceptors, and more. My head spins.

I think the most important lesson I’ve learned from Amy is that it’s not about the pain, it’s about what we want to do with our lives and how we manage the challenges we face that get in the way, including pain. Let’s take control. It’s the most powerful tool we have.

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