Category

Advocate

A Gift That Keeps Giving

By Advocate, ePatient, Leader, Podcasts 2 Comments

Regina Holliday inspires me. A learning dynamo she takes her skills – painting, connection, spirit, whatever – to catalyze whoever touches someone she has touched. She’s a gift that keeps giving.

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Imagine: Leverage Abilities. Access Better Solutions.

By Advocate, ePatient, Informaticist, Consumer, Podcasts No Comments

Create an inclusive, accessible co-working space for aspiring entrepreneurs with disabilities, small startups, or groups that serve the disability community. QuirkLaabs. hollarhype. Puffin Innovations.

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Covid19: End-of-Life Choices

By Advocate, Caregiver, ePatient, Family man, Podcasts No Comments

At least 67,000 individuals have died of Covid19 in the US and 244K worldwide so far. Each death is a family’s grief. How do we advocate for ourselves, each other? Palliative care = feeling less miserable. Have you discussed end-of-life and palliative care with your family? Do it now.

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Temporarily Able-Bodied People. We’re in This Together.

By Advocate, Caregiver, ePatient, Clinician, Family man, Podcasts 2 Comments

Covid19. Sad, angry, grieving. No grief without love. People with different abilities have a 15-min advantage on the temporarily able-bodied. Connect, learn, appreciate.

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Mind Body Spirit. Empathy and Social Justice.

By Advocate, Family man, Podcasts No Comments

In Ecuador, I found there were the traditional indigenous views of health melding with Western medicine. So, your physical and melding with Christianity as well. Your physical, spiritual, and mental health felt much more interwoven. You might see a shaman and pick up some medications from your doctor on your way to the church to say a prayer.

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Peer Support: Patience and Kindness

By Advocate, ePatient, Podcasts One Comment

Everybody possesses innate wisdom about themselves. I don’t know the answer to your question, but I believe that you know the answer to your question. I’m here to provide you with any information you need, support to access resources in the community, or just to be patient and listen. Interview about Peer Support with Keith Scott from Advocates, Inc.

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Bioethics: Autonomy. For Me, On Behalf of Me.

By Advocate, Caregiver, ePatient, Clinician, Leader, Podcasts No Comments

Bioethics, the term first coined by someone (who is a controversy) in 1971, includes four principles – respect for autonomy, nonmaleficence (do no harm), beneficence (for me, on behalf of me), and justice. Ken Goodman spoke about two of the four principles autonomy and beneficence. As with much when you start peeling back the layers, bioethics are not simple, not black and white, rather shades of grey.

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