Category

Advocate

PTSD. We Gotta Get Out of This Place.

By Advocate, Caregiver, Clinician, ePatient, Podcasts One Comment

Post-Covid PTSD: the next epidemic wave. Survivors, family, health workers. Connect, manage stress, build small positive habits, listen. It’s a family affair. For Frank

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Covid19: End-of-Life Choices

By Advocate, Caregiver, ePatient, Family man, Podcasts No Comments

At least 67,000 individuals have died of Covid19 in the US and 244K worldwide so far. Each death is a family’s grief. How do we advocate for ourselves, each other? Palliative care = feeling less miserable. Have you discussed end-of-life and palliative care with your family? Do it now.

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Temporarily Able-Bodied People. We’re in This Together.

By Advocate, Caregiver, Clinician, ePatient, Family man, Podcasts 2 Comments

Covid19. Sad, angry, grieving. No grief without love. People with different abilities have a 15-min advantage on the temporarily able-bodied. Connect, learn, appreciate.

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Mind Body Spirit. Empathy and Social Justice.

By Advocate, Family man, Podcasts No Comments

In Ecuador, I found there were the traditional indigenous views of health melding with Western medicine. So, your physical and melding with Christianity as well. Your physical, spiritual, and mental health felt much more interwoven. You might see a shaman and pick up some medications from your doctor on your way to the church to say a prayer.

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Peer Support: Patience and Kindness

By Advocate, ePatient, Podcasts No Comments

Everybody possesses innate wisdom about themselves. I don’t know the answer to your question, but I believe that you know the answer to your question. I’m here to provide you with any information you need, support to access resources in the community, or just to be patient and listen. Interview about Peer Support with Keith Scott from Advocates, Inc.

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Bioethics: Autonomy. For Me, On Behalf of Me.

By Advocate, Caregiver, Clinician, ePatient, Leader, Podcasts No Comments

Bioethics, the term first coined by someone (who is a controversy) in 1971, includes four principles – respect for autonomy, nonmaleficence (do no harm), beneficence (for me, on behalf of me), and justice. Ken Goodman spoke about two of the four principles autonomy and beneficence. As with much when you start peeling back the layers, bioethics are not simple, not black and white, rather shades of grey.

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Accessible Yoga: Honor Your Body

By Advocate, ePatient, Podcasts One Comment

Melissa Reynolds talks Yoga. With chronic pain and fatigue, there’s such a variation.  Some people are always at high levels of pain. Some people vary. There are various stages within fibromyalgia and chronic pain and chronic fatigue. Plus, you have other things going on.  Some people also have arthritis where their chronic pain comes from. Or there are other complexities. You can’t say, “this is how you do yoga for chronic pain.” Key is letting people see that they have choices, so there’s never a push. They don’t need to be aiming for anything. They need to listen to their body and do what jells with their body. What feels nice? For too long, we’ve been told you have to push yourself. You’ve got to get to this point.  This is your goal.  I’m sick of external goals   I want to work on my own goals.

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Trust: Willing to be Vulnerable. Worth the Investment.

By Advocate, Clinician, ePatient, Family man, Informaticist, Leader, Podcasts, Researcher No Comments

Best health builds on trust – trust in people, institutions, information, and solutions. I trust my primary care doc.  I trust my chiropractor. I trust my instincts. I trust my gut. I do. I trust my wife. She trusts me. Trust doesn’t mean blind following. Rather trust leads to more control or feeling more in control. I need trust when I’m in a crisis and can’t think clearly. I listen to my immediate family and my two lead docs (in that order). I’m likely to do what they recommend. Trust is for when I need to decide but can’t or don’t want to. Trust is for times of uncertainty.

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