According to the September 2012 Institute of Medicine (IOM) report, Communicating with Patients on Health Care Evidence, 97 percent of those surveyed with chronic conditions agreed that their care ought to be coordinated. Yet, only 54 percent said that their care was currently coordinated. If asked is my care for MS coordinated, at first blush I’d say yes. But then I wonder how do I recognize coordinated care? Would it be that all my providers talk to each other, work off the same data set? I realize that I am the coordinator. I ask for reports from one be sent to the others. I keep each informed about what the others are recommending and prescribing. I have a great team. I am completely satisfied with their expertise, the relationships and communication with me, and my health outcomes. My primary care doc takes her role very seriously. They all discuss options with me and seek out my personal goals and desires. They all have EMRs. Yet I am still the coordinator. Without my active coordination my care would be fragmented and based on incomplete data sets. I don’t need more than that, because it works, and I am very stable and cognitively very present and engaged. What if I weren’t? How would my care be coordinated? Would my wife or sons take it over, would my primary care doc step up? Yes, they would. Again, I’m very fortunate. I don’t see that coordinated care is the path of least resistance nationwide. It should be. How can it be?
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
resilience EMR perception employment OpenNote improv disability shared decision making Giving Blue Button health team superpower MS ePatient Determinants of Health culture PHR immigrants technology innovation choices policy mindfulness evidence safety lived experience questions storytelling Recovery Behavioral Health customer service entrepreneur Simplicity Surveys Nursing research Community Health Health Planning balance multiple sclerosis Pregnancy Exercise standards grief learning Standard Health Record magic lever grace consent goals caregivers threshold Outcomes Medical Record fear access cost Pain health partners Advocates The Quadruple Aim Fibromyalgia PCORI music HIT catalyst chronic pain Best health caregiving Politics PROM interoperability leadership People at the Center of Care Pharma Care Partner Data habits haiku medication portal relationships Communication simulation informed decision-making sax ONC Just-in-Time decisions care planning Quality Measures Mentoring engagement Rest end-of-life adherence transitions palliative care community health literacy social media