Belonging to your health team. Seems oxymoronic. Of course you belong to your health team. There is no health team without you. Yet sometimes people feel out of control, not accepted by their team. Maybe it’s because it’s not their team. Professionals and caregivers sometimes act as if or really feel that they are the team, separate from the people they serve. Today I received an e-mail report from a friend describing the meetings of the team caring for her husband with ALS (Lou Gehrig’s disease). The hope, the optimism, the details of how to manage, the welcoming, warmed my heart. The key is the welcoming across a threshold. Before the professionals weren’t part of their team. After they were. Just like that. Same day, I received an email describing the separation, frustration, lack of communication, of a friend caring for her husband who had surgery. Although the outcome was good – successful surgery – she seemed glad to be away from those professionals. They were never part of the team. How do we as ePatients welcome professionals onto our team? How do professionals acknowledge that they have joined ePatients’ teams?
Get New Posts via Email
Your support is appreciated
Subscribe to my podcast:
Subscribe to my YouTube channel:
Search This Site
inclusion informed decision-making Best health threshold music engagement coaching decision-making sax Recovery Behavioral Health shared decision making podcast research EMR chronic illness magic lever leadership caregivers Blue Button mobility Determinants of Health apps transitions portal relationships grief caregiving Advocates CDS Medical Record storytelling interoperability health goals Holocaust humor chronic pain habits cost Failure questions Care Partner pediatrics young adults PCORI care planning Pain mindfulness resilience innovation care coordination improv Just-in-Time decisions health literacy health partners superpower PHR Simplicity self-care Rest health team podcasting Health choices Citizen participation Data policy wheelchair Sickle Cell Community Health diversity listening advocacy EHR Fibromyalgia Young Adult Pay for value Communication State of Inclusion technology learning patient engagement People at the Center of Care evidence community CEO of Your Health stress trust end-of-life adherence culture pain management lived experience Health equity fear consent Exercise ePatient MS multiple sclerosis goals