Belonging to your health team. Seems oxymoronic. Of course you belong to your health team. There is no health team without you. Yet sometimes people feel out of control, not accepted by their team. Maybe it’s because it’s not their team. Professionals and caregivers sometimes act as if or really feel that they are the team, separate from the people they serve. Today I received an e-mail report from a friend describing the meetings of the team caring for her husband with ALS (Lou Gehrig’s disease). The hope, the optimism, the details of how to manage, the welcoming, warmed my heart. The key is the welcoming across a threshold. Before the professionals weren’t part of their team. After they were. Just like that. Same day, I received an email describing the separation, frustration, lack of communication, of a friend caring for her husband who had surgery. Although the outcome was good – successful surgery – she seemed glad to be away from those professionals. They were never part of the team. How do we as ePatients welcome professionals onto our team? How do professionals acknowledge that they have joined ePatients’ teams?
Get New Posts via Email
Your support is appreciated
Subscribe to my podcast:
Subscribe to my YouTube channel:
Search This Site
relationships portal grief Advocates Young Adult end-of-life Fibromyalgia Best health MS PHR improv dementia habits coronavirus pediatrics EMR informed decision-making stress health goals Data EHR magic lever health literacy People at the Center of Care health partners storytelling inclusion evidence Behavioral Health sax fear care coordination tpfalumni Care Partner lived experience podcasting caregiving palliative care questions research goals interoperability self-care PCORI Just-in-Time decisions decision-making patient experts policy PTSD culture Holocaust adherence Medical Record Health choices Abridge learning Sickle Cell wheelchair patient engagement transitions health team consent clinical decision support CDS coaching Impact Learning young adults Health equity resilience Nursing Rest engagement trust innovation Exercise Recovery advocacy Blue Button technology community multiple sclerosis Covid19 threshold ePatient leadership pain management CEO of Your Health chronic illness Failure mindfulness caregivers Pain apps shared decision making care planning music chronic pain Outcomes Determinants of Health superpower