As a person who owns my journey, my learning journey, in this case, I explore the options, the resources that are available to me. Then I direct myself to make the right choices and learn what I need to learn. At the same time, it’s learning by doing. That’s a very important part because we can learn a lot of things in theory. But can I communicate that knowledge? Does it bring us benefit? It doesn’t help us with our life unless we put this knowledge to work. So, I believe in learning by doing and learning and exploration. So, again, we learn from other people. We learn by doing our work and continuing to explore options so we can improve what we know, and the work we do.
I’m not a religious person, but I am spiritual. I’m at one in my relationship with a higher power, God, if you will, when I recognize and feel gratitude. Gratitude for living at peak capacity, for my loving family and friends, for an engaged health team, for the Forward Link community, for music, and for clean air and water.
On this first anniversary of my podcasting journey, with 52 episodes and 3,000 downloads under my belt, thanks for your continuing support. I’m grateful for you and all you do. Happy Thanksgiving! Best health, you and yours!
Careful what you wish for. Health equity and participatory medicine depend on the widespread meaningful use of patient family advisors. The trickle of such advisors should be a stream. Unfortunately, even if the supply could meet demand, health care administrators, researchers, entrepreneurs lack skill in making good use of patient family advisors. Libby Hoy leads Patient Family-Centered Care Partners, a small organization with a large vision for improving the quality, safety, and experience of healthcare through the development of authentic partnerships from the bedside caregiving relationship to the boardroom.
Allie, Becky, and Jenni have gone through the gut-wrenching experience of trying to manage the physical and cognitive deterioration of their parents. How do you partner from a distance with reluctant parents? Do you intervene? How do you intervene? How much do you intervene? What’s best for them? How do we maintain our boundaries as we help parents we love so much and make us so crazy?
Walking through the who, what, where, and why of clinical decisions and Clinical Decision Support? Why we should care and what can we do? I’m also going to talk about uncertainty, the three T’s (Time, Trust and Talk) and the two C’s (Control and Connection).
Michael Mittelman received three kidneys via transplant, his current kidney from a living donor, his mother. He identifies as an advocate for organ donation, specifically, living organ donors. He also works across disease areas to help companies understand and involve patients. He cares deeply about access and equity in healthcare. For this episode, I’m going to test calling our work as advocates, activists, and partners, an Independent Community Benefit Practice.
Patient expert, co-investigator, patient partner, subject matter expert, patient advocate, patient/caregiver activist. Many labels. Whatever you call us, invite those of us with different and unique experience, skills, and circumstances to sit at decision-making tables. Then treat us as equals and respect us. Then do something with what we offer.
Wow, four strokes by age 39. Quite a record for a sportswoman. A story about trust. First, no benefit of the doubt by the first diagnosing person thinking that Lisa was a drugged-out college student. Then Lisa’s trust in herself as a patient expert. Experience and engagement reinforce each other and builds confidence. No mystery that I appreciate I’m “good at naps.” So far, I don’t know how else to introduce young people to choices about health, wellness, or illness other than including them when someone in their lives is actively making such choices. Lead by example. Also, no mystery that I appreciate Lisa’s emphasis on telling her story. I’m delighted to be a channel.
Feeling my oats as CEO of my Health! I lead and manage a company dedicated to my health. Let’s pause and gather this frame into our brains and sinew with the help of the past few interviewees. Then we’ll explore more in the next few episodes. Come aboard and listen or read.