Adjusting to new chronic illness involves moving away from traditional medical/doctors/health care system to controlling controllable stress and recalibrating function. “Eventually, you adjust to a new normal,” says Lisa Copen, founder of Rest Ministries, Inc. Controllable stress takes many forms – toxic relationships, fear, anxiety, impatience, sleeplessness…. Managing those stresses creates space and reserves to manage uncontrollable stress – grief, new meds, less abilities, etc. Getting help managing toxic relationships has out-sized impact. Toxic relationships wear you down, drop by drop. Counseling can help here. Meditation and yoga pair well with impatience and anxiety. Have fun: when I got my multiple sclerosis diagnosis I had to redouble my efforts to have fun – more clearly defining what having fun meant to me and including fun as part of everyday life at home and at work. Spending time with my honey and my family, playing music, reading, making a difference, mentoring. Recalibrating function – adjusting to the new you: Physical or occupational therapy can help to manage changing abilities to carry out activities of daily living (meals, elimination, movement, dressing, chores). Community services can help with transportation and family support, among other things. We often expect that the traditional medical/health care system should help with stress and function. That’s not their core business, they’re often not good at it. Those with new chronic illness need to look elsewhere and add to their health team. Right now, insurance doesn’t pay well or doesn’t pay at all for controlling controllable stress or recalibrating function. Maybe that will change as incentives move from fee for service to capitation (paying separately for each service to paying a set amount per person).
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
innovation Simplicity perception OpenNote health literacy consent health team Politics grace Giving Surveys PROM Standard Health Record Just-in-Time decisions Health Planning caregivers end-of-life standards choices community resilience Data entrepreneur social media storytelling cost Recovery PCORI multiple sclerosis habits Pharma Advocates Community Health threshold HIT adherence lived experience shared decision making MS goals informed decision-making EMR medication portal caregiving Determinants of Health Behavioral Health Rest Best health superpower Communication Quality Measures Exercise The Quadruple Aim disability magic lever access care planning Pain learning immigrants chronic pain technology questions People at the Center of Care PHR fear health partners Medical Record music Nursing improv relationships research culture grief engagement transitions Care Partner mindfulness leadership Mentoring balance palliative care policy evidence sax interoperability Pregnancy Blue Button ePatient safety ONC employment Outcomes simulation Fibromyalgia haiku customer service catalyst