When diagnosed 7 years ago with Multiple Sclerosis, my neurologist told me I’d had MS for 25 years. Why didn’t I know it before? He said that I was a master at unconscious adapting – my nervous system and brain adapting, creating new pathways, and my creativity in finding alternate ways to do stuff. Adapting to maintain. Now as my balance and my left leg strength diminish, I’m adapting again. I’ve left my job as well to find a better balance in my life. More adapting. This time it’s more conscious adapting. Building my core strength, compensating for my lack of proprioception (the fifth sense of knowing where your body is), and continuing to meet my personal mission. Before I was diagnosed I composed my mission: Increase the sense of balance patients, caregivers, and clinicians feel as they work together toward best health. So, balance as not falling and life in harmony – yours and mine. Magic levers of best health: balance, harmony, adapting. Onward!
Get New Posts via Email
Your support is appreciated
Subscribe to my YouTube channel:
Search This Site
policy habits chronic pain Simplicity Fibromyalgia questions engagement improv goals balance caregivers music health team grace magic lever EMR simulation care planning fear superpower catalyst Mentoring Communication grief palliative care sax ePatient mindfulness haiku transitions community ONC The Quadruple Aim Exercise PCORI HIT culture consent portal Standard Health Record leadership lived experience Nursing Quality Measures medication learning MS Best health innovation Pharma Community Health Rest standards OpenNote immigrants Behavioral Health adherence relationships storytelling informed decision-making Determinants of Health perception Advocates Just-in-Time decisions cost social media safety Giving Pregnancy Care Partner Medical Record customer service Blue Button Politics Health Planning disability evidence PHR choices Surveys Outcomes research health partners resilience Data multiple sclerosis employment People at the Center of Care PROM end-of-life threshold access interoperability caregiving technology entrepreneur Recovery health literacy shared decision making Pain