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The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. Material on this site created by others is theirs and use follows their guidelines.

Maiden solo #wheelchair experience https://t.co/XRdK6quw5E @S4PM @PatientVoices @caregiving @mike_mitt @CoalitionCCC #accessibility @pccdsln

Nice. Good to hear the human side https://t.co/6kcZJShO17 https://t.co/ZnCD9uG0t5

Drugmakers defy Trump's call to drop prices https://t.co/tAc2MDGFGR This is the war on drugs. NOT

The Culture of Participatory Research https://t.co/fJjHaJBfgb @PCORI @S4PM @praxagora @PetrieFlom Advancing the culture.

I added a video to a @YouTube playlist https://t.co/sHk84lUMCd Why I Tattooed My Health Data Over My Heart | Casey Quinlan

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Recent Blog Posts:

ePatient
July 15, 2018

Helping Hands Everywhere

I took my foldable electric wheelchair solo on my trip to Philadelphia this week. My last solo wheelchair experience was in New York City in 1977 when I took a…
AdvocateResearcher
July 8, 2018

The Culture of Participatory Research

My recurring mind loop these days is non-traditional patient, non-traditional patient, non-traditional patient. I heard it repeatedly while attended a one-day symposium, Putting Patients at the Center of Research: Opportunities…
AdvocateCaregiverClinicianePatient
July 1, 2018

2+2=what?

Alice's blood pressure is 110/50 right now. That's a data point. Her blood pressure, untreated, lives around 150/90. She's prescribed medicine for it, but she ran out last week and…

As an action catalyst, I empower people traveling together toward best health (people as patients, caregivers, parents, clinicians, direct care staff, communities, and the people that support them). I wear many hats in healthcare:

  • Patient with Multiple Sclerosis
  • Care partner for several family members’ end-of-life journeys
  • Nurse for 40+ years
  • Informaticist
  • QI leader
  • Husband, Father, Opa, Musician

I specialize in patient/ caregiver/ clinician/ community relationships and the intersection between technology and the health journey.

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