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#nqf19 would nqf ever offer average ‘healthy days’ as a value based measure?

#nqf19 how are NQF endorsed measures themselves changing as a result of including/integrating determinant of health data?

#NQF19 Where is inclusion of people with disabilities in presentations? A person with mobility disabilities couldn’t make it to the podium. Best we can do?

#NQF19 Attribution models? Medical care is a team effort. Why do we try to attribute to single clinicians?

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Recent Blog Posts:

AdvocateCaregiverePatient
March 24, 2019

Not one transition. Many.

Alexis Snyder, a parent of a teenager with chronic complex health issues since birth, shares her journey. She speaks about accepting what is, helping her daughter prepare to manage the…
ePatientMusicianPodcasts
March 17, 2019

16, Sophomore, All-In

Welcome to the Health Hats podcast series about young adults transitioning from pediatric to adult medical care. In this series, I interview young adults with complex medical conditions, their parent…
AdvocateCaregiverPodcastsUncategorized
March 10, 2019

Three Young Adults. 22 Years.

Interview with Jill Woodworth, mother of 4, three with Tuberous Sclerosis, managing the transition from pediatric to adult medical care. Fascinating, frustrating, heart-breaking, and inspiring. Silos and boundaries,  crossing the…

As an action catalyst, I empower people traveling together toward best health (people as patients, caregivers, parents, clinicians, direct care staff, communities, and the people that support them). I wear many hats in healthcare:

  • Patient with Multiple Sclerosis
  • Care partner for several family members’ end-of-life journeys
  • Nurse for 40+ years
  • Informaticist
  • QI leader
  • Husband, Father, Opa, Musician

I specialize in patient/ caregiver/ clinician/ community relationships and the intersection between technology and the health journey.

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