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The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. Material on this site created by others is theirs and use follows their guidelines. In this 15th episode of podcast series: Young Adults w Complex Conditions, Diane tells us Mallory was Captain of her, lived HAPPY, and shares lessons. @PCORI @S4PM @Salt_In_My_Soul @CF_Foundation @healthevoices @pccdsln @BostonChildrens

Lauren's gut can’t absorb nutrition.She totally manages all nutrition through her veins since 13. Podcast episode: Young Adults Transitioning from Peds to Adult Medical Care. @healthevoices @PCORI @S4PM #tpfalumni @sickboypodcast @wegohealth @ShivdevRao

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Recent Blog Posts:

July 14, 2019

Salt in My Soul. An Unfinished Life

Mallory Smith lived and died with Cystic Fibrosis. Mallory wrote, "Salt in My Soul: An Unfinished Life." In this fifteen episode of Young Adults with Complex Conditions, I speak with…
July 7, 2019

But You Can! Total Self-Care at 13

Lauren Reimer-Etheridge lives well with a rare condition where her gut can’t absorb nutrition. Incompatible with life, Lauren takes and totally manages all her nutrition through her veins since age…
June 30, 2019

Been There, Done That. Open Heart.

MarlaJan Wexler, a registered nurse, supports young people with stories similar to hers: congenital heart defects and open-heart surgeries.  In this thirteenth episode in the series about Young Adults with…

As an action catalyst, I empower people traveling together toward best health (people as patients, caregivers, parents, clinicians, direct care staff, communities, and the people that support them). I wear many hats in healthcare:

  • Patient with Multiple Sclerosis
  • Care partner for several family members’ end-of-life journeys
  • Nurse for 40+ years
  • Informaticist
  • QI leader
  • Husband, Father, Opa, Musician

I specialize in patient/ caregiver/ clinician/ community relationships and the intersection between technology and the health journey.

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