Life literacy – If you can’t explain it to a six year old…

I play baritone saxophone in community Latin and blues funk bands.  Our professional musician leader teaches us the language of music theory – this week it’s Minor Dorian and Lydian scales. As an amateur I understand about a third of … Continue reading

Scared?

My friend, Phyllis, in Cleveland suggested I might be asking the wrong question: “What works for me when I’m scared and what doesn’t?” You may recall that readers who have been patients and caregivers have been adamant that this is … Continue reading

I’m So Discouraged

Several times this week I heard a variation on: I’m so discouraged, I thought I was doing better. I just keep sliding back. I really suck at this. The topics: meditating every day, losing weight, managing anxiety, soloing, recovering from … Continue reading

Disabled. Looking for Work. Reference

Here’s the reference I didn’t accept on LinkedIn: He’s seriously annoyed with his disability, full of himself and his opinions and perceptions about life and health. Blogs every week whether or not he has anything to say. Can’t keep a … Continue reading

Last Post, New Year

Last post of 2015. Reviewing the year in 51 blog posts, we discussed: Death and Dying Give Me My Dam Data Values Leadership Work/Life balance Grace Ignorance, Uncertainty, Research Music Caregivers Experience of People at the Center And more I’m … Continue reading

Amateurs Among Professionals

I play in an amateur blues funk combo. Yesterday we had a gig at a local Jazz club. Hear it here. We played in a lineup of 9 amateur community bands,  each led by a professional musician. An entrepreneurial professional … Continue reading

Mistakes – Finding your Groove Again

We make lots of mistakes improvising while playing music in my jazz combo – wrong notes, lose our place, no feel for the rhythm. No mistakes never happens. The music is good when the group communicates, recovers and finds the groove again. … Continue reading

Adjusting to new chronic illness

Adjusting to new chronic illness involves moving away from traditional medical/doctors/health care system to controlling controllable stress and recalibrating function.  “Eventually, you adjust to a new normal,” says Lisa Copen, founder of Rest Ministries, Inc.  Controllable stress takes many forms – toxic relationships, fear, … Continue reading

Take a break – now

Today I’m bone tired. Tired of grief, tired of having MS. Interesting how physical health and mental health go hand in hand. Medical challenges weaken our reserves, at the very least make us crabby fearful, anxious – tired. Medical challenges … Continue reading